#34579 05-04-2006 04:34 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Today is my niece's 6th birthday and her daddy can't be here because Oral Cancer stole him from us. Please pray for her - it's her first birthday without him - and for her mother, and, although I know it's selfish, for me. This is a horrible day.
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#34580 05-04-2006 05:50 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | God and time heals all wounds..... Prayers are answered you and your niece is in ours. We christians are an odd lot, we believe in the immortality of the soul, so if you are a christian you know that your brother is in a place where there is no PAIN or SUFFERING and someday you will be reunited.
Yours in Christ
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#34581 05-04-2006 08:05 AM | Joined: Mar 2006 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 90 | Well said Darrell!
Ditto here and Tonya may we soon someday find a cure so little girls/boys can grow up and grow old with their mommys and daddys!
You and your family are in my prayers.......
Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014
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#34582 05-04-2006 08:50 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Tonya,
Please wish your niece a happy birthday from me.
I know how much you all miss David. It's never selfish to ask your friends to pray for you.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#34583 05-04-2006 11:11 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Tonya
I will celebrate my birthday soon with out my Mom for the first time and shit I'm 57 and cannot deal, so my heart goes out to you and your niece and all the family..Talk about the good times it helps me, both to remember them and to keep them with you.
May your God walk with you..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#34584 05-04-2006 03:57 PM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Thank you all. She had a little birthday party with her classmates after school and she had a good time. I think I managed to keep my tears from her although I bawled all day at school. (I'm a teacher and I'm sure my kids thought I had gone off the deep end, as usually happens to teachers in the spring.) My sister, too, assured me we will see David again, he just got to heaven before us. I just miss him so. My son just bought his first vehicle - a 1967 Chevy pickup and I know my brother would love it. I'm sad he can't be here to help Brandon, as restoring old vehicles and tinkering with them was one of his joys in life, but I know he's giving us a "two thumbs up" from heaven for picking a classic. After his surgery, when he could no longer speak, he would always give us the two thumbs up when we asked how he was. This will be a long life without him and yes, I am a Christian, but when I die if I find out this Heaven thing is a crock, I'm going to be kicking someone's (#$$!!!!!!!
I know, that was probably sacreligious, but I can't help but think that sometimes. It's like all hopes are pinned on it and at time like these it's so hard to put all your trust into something you can't confirm. I guess I'm still down from putting all my hope and faith in a miracle and cure and getting the rug jerked out from under us. Sorry if I sound angry - I still am sometimes, but I know it's not what you need to hear. The important think is that his little girl did well today and I will just have to grow up and deal with this better. My sister is a "cup half-full" person and is so grateful for the 5 years David had with her. Being the "cup half empty" sister, I just see all the time ahead without him and all the memories that will never be made. Maybe I should take a drink from her cup sometime.
Bless you all,
Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#34585 05-04-2006 04:23 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Tonya,
Everytime I read your posts they bring tears to my eyes...I know how important the little lives are that are affected by this diesese. I was 4 months pregnant with my 2 1/2 year old daughter when my mom was diagnosed and I had so much stress from the ups and downs of the diesese. Keeley my daughter is my mom's first grandchild and she begged for years for a grandchild (I was 35 when I had her) The first thing my mom said to the doctor when she got her diagnosis was "but I'm going to be a gramma!"
My biggest concern was that Keeley know her gramma and know what a truly special person she is. We have been fortunate that she has been cancer free for 2 1/2 years and Keeley spends lots of time with gramma.
Please wish your little niece a Happy Birthday for me I am sure her Daddy is looking down on you all during all the special times.
Hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#34586 05-05-2006 03:27 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Toyna, have you read "When Bad things happen to Good People" ? You will help your family most of all when you can get to that cup 1\2 full feeling. Rember- Life is for the living and good memories of those who are no longer with us. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#34587 05-06-2006 11:10 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear Tonya,
Sometimes words alone can't convey how we really feel inside. This is one of those times for me. Six years old is a very young age to have endure a birthday without your Father and try to understand why.
I hope time will help heal the pain you are both feeling now.
All my Best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#34588 05-07-2006 06:18 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Thank you all. Today is the "family" party to celebrate her birthday. I know David will be there in spirit.
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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