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#34491 02-28-2006 05:08 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Eve, If I were your Mom and had a MD behind my name, I would have told your Dad[or my husband] to go find another caregiver! Especially with his pharmaceutical background. Watching a loved one suffer is one thing, but having a medical background and knowing that something can help is another and is torture when the advice is ignored. Take care of you Mom. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#34492 03-01-2006 10:50 AM | Joined: Feb 2006 Posts: 7 Member | | OP Member
Joined: Feb 2006 Posts: 7 | I appreciate this forum and all your help so much. My Dad agreed this morning to the Fentanyl patches and is starting use today. Only four more days of IMRT left, and Tuesday was the last chemo. He's starting to get more motivated to swallow b/c he can't really get the anti-nauseau meds' full effects when he grinds them up and puts them in through the tube.
Thank you so!
Eve | | |
#34493 03-01-2006 12:51 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Eve, that is terrific news. I am absolutely sure his interaction with everyone will improve dramatically as his pain diminishes and then vanishes. If he has not told you, more than one patch is many times necessary. At the height of my burns, I am pretty sure I was using four at once. Please let us know how he is doing. I am so very anti-drug, but after I experienced Fentanyl, I know that some drugs are VERY good. | | |
#34494 03-05-2006 06:04 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eve,
It sounds like your dad is turning the final corner, heading for the backstretch with the finish line in sight! It sounds like this segment of the race is behind him. What a wonderful time to stop and reflect on the succeses achieved.
There is some rough road ahead but just take it a step at a time.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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