#32959 09-24-2003 10:48 AM | Joined: Jun 2003 Posts: 8 Member | OP Member Joined: Jun 2003 Posts: 8 | Results of the most recent ct scan received today. There are a number of small nodules in both lungs as well as two suspicious lymph nodes. They will refer me to a thoracic surgeon for biopsy to determine which cancer (adenoid cystic carcinoma or the breast cancer) has metastasized.
Stage III Adenoid Cystic Carcinoma, submandibular salivary gland. Diagnosed 10/02. Neutron radiation completed 12/24/02. Stage III breast cancer 3/03. Mastectomy, 4/03. ACC Mets to lungs 9/03.
| | |
#32960 09-24-2003 01:17 PM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Jan 2003 Posts: 95 | Lili,
Do your best to keep your spirits up. You conquered so much . YOU CAN DO IT. Always remember your husband would want you not to give up. Ask for help and feel free to vent to anyone on this site or whoever you can use as a sounding board but keep on fighting. My thoughts are with you. Diane | | |
#32961 09-28-2003 06:29 AM | Joined: Jul 2003 Posts: 40 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jul 2003 Posts: 40 | Hello Lili,
My thoughts and prayers are with you during this difficult time in your life.
Life deals all of us some challenges that we will never understand.
I know that being with family and friends help more then anything else during these times. Praying and journaling is huge to get you through one day to the next.
Again, you are not alone, even though it may seem like it. I will take you with me in my thoughts and prayers to help you lift this burden you are carrying to give you more strength and courage. God Bless...and Take care....Flo XoX
Caregiver for my loving Sister Linda 37, Advanced Recurrence SCC of the Head and Neck. 2003 Diag. June 2000 with Tongue Cancer in Stage 3/Treatment RAD
| | |
#32962 09-29-2003 09:44 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi to all my new friends I have read many of the old posts and try to keep up to date with current issuses. I would just like to try and share my recent experence with you, like I suppose many of you my public persona is bright, cheerful, postive, upbeat and of course everything is Fine, Will be Fine, worried? no not me. Well last night was spent in the ER at the hospital with me having taken half a bottle of temazapam, worse than that I took them while on the phone to by best friend, who is the only one who knows all the details of my cancer. My husband is blind with advanced prostate cancer, my mum is 80 and I thought that I could carry all their loads as well as my own, I WAS WRONG. So please if anyone out there is tying to shoulder a load to heavy, please, please find someone to help you. It may seem ironic that with one breath I am trying to survive and in the next breath I am trying for suicide. This has not been an easy post for me, but if it helps just one person out there to avoid what I have been through in the last 24 hours then it has all been worth it. Thanks to all who share their thoughts, let us hope that the power of friendship across the world can be of benfit to us all. Helen.
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#32963 09-29-2003 09:54 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 139 | Dear Helen,
How brave of you to come on to the forum and share that with us. I admire your courage and that is what you have, regardless how you feel today. Many of us have been there and need to hear from you. My faith is what keeps me going.."if God leads you there, He will lead you through it" And now we need to get you HELP! As indeed you are not Superwoman! Please contact your church, or social services or anyone who can give you the physical and emotional supposrt you need. We love you, Helen........Please keep us informed on how you are doing, OK? Judy U
Judy U Stage I SCC floor of mouth, left radical neck dissection 8/03
| | |
#32964 09-29-2003 10:51 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi Judy Thanks my friend says I am not superwoman, true I couldn't wear the tights! But seriously thanks I have found what I think is a lump in my tongue, not the red or uclerated bits, it is as I slide my tongue between my teeth I am sure I can feel a lump, maybe just scar tissue from the last op, but also there appears to be a something in the back of my throat as I swallow, now this all my just be a panic attack, but my next hopital is not until the 28th of Oct, I am probably just having a panic attack but I am p***ed off! Thanks for being there. my motto has been Live Well, Laugh often, Love Much but today is crumbling! Luv Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#32965 09-29-2003 11:16 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hi Helen,
Please don't do anything rash. We are all hear to vent to. I want you to know that people on this forum are all very supportive of each other and pull for everyone to survive. There are bumps in the road that we all have to experience before we are over this dreadful cancer. Without this forum to gain information I don't know where I would be. Take care and post often. Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | |
#32966 09-29-2003 04:24 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2003 Posts: 139 | Dear Helen, And don't forget "dance as though no one were watching" I think a dance is in order here. Helen, I know precious little about medical care in the UK but is it possible to get an earlier appt. re:your tongue? Oct 28th is a bit of a wait when you are this scared. Keep writing and let us know, OK? It may be a panic attack but it is very real to you right now and that is scarey. Hang with us. Love Judy U
Judy U Stage I SCC floor of mouth, left radical neck dissection 8/03
| | |
#32967 09-29-2003 04:49 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | Helen, Although I haven't walked in your shoes, I do understand. Please, take a deep breath and know there are people who care about you. There's a lot of help available to assist you in getting through life's bumpy patches. I've found the world is full of very warm hearted individuals who are eager to help. My thoughts are with you. D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
| | |
#32968 09-29-2003 11:24 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | Hi everyone Many, many thanks for all the posts and e-mails, your support has really helped, I have managed to resolve some of the personal issues in mylife, didn't realise the overload that was happening. I am going to our family doctor tomorrow and will TRY to talk some of this through with him. They don't tell you that along with the cancer your whole life gets screwed up in knots, I am sure the last 2 years have contained more than 24 months!!!! God Bless you all, will keep you posted. Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
Forums23 Topics18,170 Posts196,930 Members13,105 | Most Online458 Jan 16th, 2020 | | | |