#3019 07-14-2004 01:11 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) |  Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Bob -- praying for the best for you... I visited Hong Kong medical facilities in 1992 after blowing my knee out during a summer trip to China. Long story, but I too was impressed with some of the technology even then... HK is a cool place...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#3020 07-14-2004 06:03 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Bob, We have been here long enough so you know what I am thinking.....
take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#3021 07-14-2004 06:54 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Bob-
Don & I were going thru the say "jitters" with Don's 6-month post-treatment CT scan. The doctor told us he would be able to get the results the same day (Friday 7-9-04) and would call us in the late afternoon. We were happy that we wouldn't have to wait the entire weekend...but "Murphy's law" as it is...we received no phone call with the results. So, as you can imagine we thought of a million and one reasons why he didn't call...#1 on our list was that they found more cancer and the radiation oncologist and the medical oncologist were busy consulting each other as to their new game plan. By Monday afternoon we couldn't take it anymore so we called. We just happened to call right as the results were being faxed in and ....Thank you God...the scan was all clear and cancer free.
I am praying for you to receive the same news...and hopefully you won't have to go through an entire weekend thinking of all the worse case senarios.
Good Luck, Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#3022 07-15-2004 03:50 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Contratulations Lori & Don! I am sorry you had to drag it out over a weekend, though. We just can't seem to get off the roller coaster with this horrible disease. Kind of like stop the ride I want to get off!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3023 07-15-2004 10:49 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi all. First, thanks for the support, finally got home despite a T8 Tyhpoon signal, no boat, took the train as well as everyone else in Hong Kong I think.
Scan came out great, no issues except inflamation to my shoulder which I could have told them, Uptake at the surgical site has gone away finally, as well as another area they thought might have been post dental treatment trauma. Each time the report gets shorter and shorter
Oncologist said "See you in 6 months" ENT would probably still do an exam in the middle of a restraurant if we happend to be in the same place at the same time, but that's the way he is (last "exam" was in the hospital cafeteria)
Thanks again for your support, I pray that all of us can get the same sort of results someday.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3024 07-15-2004 11:08 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Bob, it is indeed the best news I receive today. I have been thinking how you can go back home when most of the public transport comes to a halt in HK. I tried to email you but my email network is also affected. Good to know that you are finally home and the best thing you can do tonight is to celebrate with Nicole. Congratulations!
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#3025 07-15-2004 11:16 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Bob,
Great news! Congratulations! Good to see that your doctor is so thorough that he's willing to exam you in the cafeteria! Let's hope that the reports get so short that they have to write them on a post-it.
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#3026 07-16-2004 01:31 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Bob,
That's terrific news! I guess it's worth putting up with weather and traffic hassles to get a report like that.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#3027 07-16-2004 01:42 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Good for you Bob, now I can uncross my body parts.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3028 07-16-2004 02:20 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Great News Bob,
Now the jitters can be left behind..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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