#27141 02-04-2005 06:40 PM | Joined: Dec 2004 Posts: 66 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2004 Posts: 66 | Well, I went to the ENT yet again, and he set me up for a biopsy on the back left side of my tongue finally! It's scheduled for the 17th, one day before my birthday. He did say that normally for me to have pain I would have a large tumor if it was cancer and he still doesn't see much in there. So thats good so far lol. He could see a little bitof a red spot this time and he will be taking the biopsy from where I need him too so thats good.
Hopefully it's nothing worth worrying about or if is carcinoma hopefully I will catch it early enough to reduce my morbidity!
Wish me luck, and if it turns out benign please forgive me for wasting everyone's time here. | | |
#27142 02-05-2005 03:11 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello rdb7777,
Don't ever feel you are wasting anyones time when you post your treatment and concerns. If we can't offer exact advice based on our experiences, we can offer our support. Remember your now part of one large international cyber family.
Good luck on your biospy on the 17th. Please let us know how it turns out. We love to hear good news.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#27143 02-05-2005 03:46 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi rdb7777, I have my fingers crossed that your biopsy turns out to be negative for c. God Bless You! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#27144 02-05-2005 03:57 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Hi rdb7777,
Good luck with your biopsy -- I hope it turns out to be benign. However, I don't like to hear about doctors generalizing when it comes to the implications of pain. In the months leading up to my diagnosis, a couple of doctors told me that my 24-hour-a-day pain was actually a good sign because that meant it almost certainly wasn't cancer! Also, while I did end up with a diagnosis of SCC, it was not a "large tumor" that caused the pain -- it was Stage II and it was treatable. I'm not trying to lead you to any conclusions here -- I just don't like to hear what sounds like a doctor jumping to a conclusion before getting the biopsy results.
I'm hoping in your case the news turns out to be good, but if it's not, please be sure to get to a comprehensive cancer center to be seen by a team that deals with these issues day in and day out.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#27145 02-05-2005 06:12 AM | Joined: Dec 2004 Posts: 66 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2004 Posts: 66 | If I get bad news I am going to try like hell to gwet into md anderson in Texas as i'ts the closest one to me. I had thought of going to the cancer treatment centers of america but after looking at the quakwatch page that someone posted I think I'll try the one in Texas now lol. | | |
#27146 02-05-2005 06:14 AM | Joined: Dec 2004 Posts: 66 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2004 Posts: 66 | results on my biopsy should be back in a week normally, is that correct? | | |
#27147 02-05-2005 06:28 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | What Cathy says is something my doctor also told me. I had a sore on my tongue after radiation that stayed there for almost 5 months. We biopsied it, negative. He told me that if it ever became excruciatingly painful to call him immediately. I told him that I had always been told that if it hurts, then it's most likely not cancer. He said that the majority of the time that holds true, but that no doctor should assume that pain equals benign.
I have a pretty good feeling you do not have cancer but I sure wouldn't say that based on your pain. Let us know!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#27148 02-05-2005 08:09 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | rdb7777
good luck for 17th my best wishes to you. stay positive
regards maz | | |
#27149 02-05-2005 11:35 AM | Joined: Dec 2004 Posts: 66 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2004 Posts: 66 | Thank you all so much for your support, this is truly a wonderful organization. Really can't thank you guys enough. | | |
#27150 02-06-2005 03:39 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | rdb
Lots of positive vibes coming your way..we are hoping for the best possible result for you.
I think from what I remember it took about a week for Pete`s biopsy to come back...a lifetime!
Best of Luck
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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