#2679 07-09-2004 05:52 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kris, What a great idea...we all bring something local to donate to the raffle! Maybe the (ex) Dallas Cowboys will let me have a set of handcuffs.  Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2680 07-09-2004 08:03 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Okay comedians!!!! Although the handcuffs might go nicely with the target shooting.
"Take aim at your Cancer" "Arrest your Tumors!!!"
All joking aside we will be looking for donations to the raffle. It was a bit early to post requests yet. Believe me I will be begging later.
We will be asking that things ship a head of time (probably to Judy's, she volunteered to help me with this) That way we can get stuff numbered and such.
Just keep two things in mind. People will be flying home with their winning item (must be manageable and legal.)
And "Don't" spend all your money on the slots. This raffle will be for OCF. We'll probably have two prices of items. As you can tell not all details are worked out yet.
Looking forward to some of the things you guys will come up with.
Dinah | | |
#2681 07-14-2004 06:14 AM | Joined: Mar 2004 Posts: 24 Member | | Member
Joined: Mar 2004 Posts: 24 | Been out of touch with site for a few weeks. The meeting is a great idea and thak you to all who he;ped in the planning. Looking forward to meeting every one in September. | | |
#2682 07-19-2004 10:40 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Why is the banquet so expensive? Their in house house buffet is only 12.95 a person (and that's the emperors one). Their top restaurant offers a steak and shrimp dinner for $19.95. Maybe we should make a group reservation at the restaurant. I can deal with dinner for 2 for 80+ dollars in San Francisco but Vegas has a reputation for inexpensive food.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2683 07-19-2004 11:31 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | I don't know since I'm not on the planning committee, but I imagine part of the cost is for renting the banquet room. I assume we will have an entire room just for OCF. The $40 also includes the Friday night snacks. Although I certainly wouldn't be upset with a lower price! I can't remember the last time we spent even $50 for a meal for 2, let alone $80. I guess we don't get out enough!!!
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#2684 07-19-2004 12:00 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi Guys and Gals Here's a quick breakdown of the costs. We have a banquet room set up for Friday night for hospitality, place to check in at arrival, unwind, meet and greet. For those familiar with the hotel this would be the Pearl Room Is $250.00 for the room based on 50 people, this doesn't include refreshments' etc. Saturday afternoon/evening we have a banquet room set up plus dinner buffet/soft drinks (Dynasty Room) the cost for this was $32.00 per person for the room and food, based on 50 people. We came up with the 50 person number based on responses on the board, the actual number that have responded by e-mail and sent deposits is quite a bit lower, just enough for a booth at Denny's. (HINT!!)  So actually we're (I'm) hoping the $40.00 asked for covers the additional cost of the snacks for friday night, plus any other expenses such as name tags, etc. Plus, any left over, (and I have to make an accurate accounting of what came in and went out to the other members of the comittee) will go to OCF of course. I kind of wondered about prices too when we finally aggreed on the price for banquet, but I remember my 10th high school reunion was about 35 a person, and that was at the firefighters hall. And that was a few years ago  So, there you have it. Tried to keep the room cost down, otherwise about $100 a night for rooms, so in one pocket, out the other I guess.
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#2685 07-20-2004 03:31 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Did anyone see National Lampoons Christmas Vacation? There is a scene in it where the family sits at the table trying to eat a Turkey that was so overcooked it blew up when it was cut into. They all sit there crunching, choking and trying to wash it down with their drinks. I just can't get that picture out of my head! This should be one hell of a banquet. | | |
#2686 07-20-2004 05:24 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Thanks for the explanation Bob - I didn't consider that we have to rent the space as well. You did a great job on the room prices - I compared then with the Excalibur (where we usually stay) and the prices were much better so it is a tradeoff. It the Imperial on the strip?
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#2687 07-20-2004 05:43 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | How about collecting pledges on how many mets or cancer cells we can kill? A coordinated blast on the evening news across the country? I don't have enough money to do much but I certainly have enough energy to do a lot to help Brian fund the tremendous amount of work he has already and I am sure will continue to contribute to public awareness of oral cancer.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#2688 07-20-2004 11:44 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Ed, I was thinking of maybe trying the pledges on the scoring on the shooting part, but problem is I haven't a foggy clue as to how one scores a target shooting competition. Used to shoot archery many years ago, sort or remember the perfect score being 300 after 10 flights of 3 arrows (I think) but don't know firearms scoring.
The story about NL's Christmas Vacation reminded me of the movie "Christmas Story" the neighbors dogs eat the turkey and Ralphie's family wind up in Chinese restaurant.
"You'll shoot your eye out!"
By the way, I can't take credit for finding the good deal on the hotel, Dinah did all the research and made the contacts on that one, and did a great job. I just "paid the money" as it were. Hotel is on the strip, I think served by the monorail. Check their website, I think has descriptions or photos of the banquet rooms.
Bob
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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