#26749 09-29-2004 01:42 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | In case you don't see the "my profile" link, it is near the top of the page right below the "new topic" box. It's small and a little hard to see.
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#26750 09-29-2004 04:23 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Tiamaria,
Is it possible for your general practitioner to refer you to an ENT doc in Vancouver to speed things up? It's a pain to have drive into the city but if you can schedule the biopsy sooner, it would be worth it.
Good luck and best wishes, Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#26751 09-29-2004 06:48 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Presently I am devoted to calling hospitals within 1 1/2 hours of my home..it certainly isn't a problem to drive for a sooner biopsy & peace of mind. The surgeon who got my U.S. results last week told me it would be within a week (so I dont know why not, other than booking problems locally) & he wants to follow up ASAP. "Play the cards u r dealt" I guess & I am NOT playing with a stacked deck  My ENT has referral appts only that expire in 6 mos so I need a new one imagine that!  G'nite all & my best wishes & appreciation to the Forum
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#26752 09-30-2004 08:15 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | I got an appointment! Oops I posted under general board.."Angels are everywhere"...you guys ARE our Angels. Thanks & I will post my results after the biopsy on Oct 08, 2004.
Tia Maria
Diagnosed Feb 05, 2004
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#26753 09-30-2004 08:36 AM | Joined: Oct 2003 Posts: 89 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2003 Posts: 89 | Sorry to hear about the recent developments.
Just wanted to let you know, however, that I had to smile about your comment of running to the computer when the kids are quiet, and running off to soccer games. That's me too! It feels kind of nice to know that others are in a similar place.
I also am waiting for Oct 8. I return to my doctor to find out if more surgery is coming (good news is that 2 doctors say no sign of cancer, but may face surgery due to other problems). I will be thinking of you and saying a little prayer.
Michelle
History of leukoplakia <2001-2004. SCC lateral tongue 9/03; left radical neck dissection & hemiglosectomy 10/03, T2-3,N0M0; 28 IMRT radiation completed 12/03. 30 HBO dives Oct-Nov 04 for infections and bone necrosis -mandible.
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#26754 10-15-2004 09:19 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Hi Michelle, Danny, Bob, Kirk, Marica, Cathy, Rosie & Sheldon...otherwise known as "Angels"
Thanks for caring & support-I have a feeling I will be needing some more in the time to come as my biopsy results have come back as follicular cancer so my Thyroid now needs to come out. Hope your outcome is good news, Michelle (the hardest part is telling the kids what to expect without being too honest or dishonest.) So I am once again online while they are at school. I have the luxury of kid free contemplation about my upcoming surgery...will it be easier? Will I need radiation or chemo? Will the specialists help with these decisions? As Helen said in another post "forewarned is forearmed!" I do know more THANKS to the forum & will post any good advice I learn along the way.
Take good care.
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#26755 10-15-2004 10:20 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Maria,
Sorry to hear about your new occurence. That's the pits!
Are they taking the entire thyroid or just one side? I had partial thyroidectomy and parathyroidectomy when the removed my larynx. Doctor had hoped that the other side would kick in so I would not have to take synthroid. However, the part that was left was too fried by radiation to pick up the slack. I had no cancer in the organ itself, not now take synthroid daily as it the other half does function. Took forever to get my dosage correct. Make certain you have a full thyroid test before they do surgery so you know your TSH, T3, etc. levels are so you can get back to YOUR noraml. The noraml range for these numbers is large so you need to know what your normal is. Have you had radiation to that area before. It would help if you had a report with that info from before radiation. They should have done one. I don't have my tests with me, so don't have all the field names on test. Will try to remember to look. I will also talk to one of the guys I work with who had thyroid problems. I think they removed his entire thyroid and he is doing just fine.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#26756 10-15-2004 04:00 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Thanks Eileen, no I haven't had radiation and wouldnt you know I broke the cardinal rule...always bring someone to your appointments as I do beleive he is wanting the whole thyroid out but I could be wrong as the biopsy was taken from right lobe only and all I heard was "further surgery is a neccessity!" I will find out whilst being booked.
Good news is awesome to hear either way, TA!
Take good care
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#26757 10-16-2004 02:09 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | God Bless you Maria, will be thinking of you and praying....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#26758 10-16-2004 05:23 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Maria
I'm sorry that you are facing more surgery, get your pen and paper out girl, write the questions down before you go back, need you to get this sorted once and forever....
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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