#26611 08-17-2004 12:10 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) |  Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Hi, Andy!
Wonderful, wonderful news about a baby girl! Tom and I are proud grandparents of a one-year old girl and a one-month old boy and, if it weren't for Tom's cancer, we'd be sitting on top of the world.
I had to rely on deep-breathing exercises to calm my anxieties while we waited to find out what was going on with him, and I'm sure we all understand your feelings now.
I hope all goes well, and that the next few months will be spent joyously awaiting that precious gift from God.
Prayers are coming at you!
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#26612 08-21-2004 05:49 AM | Joined: Aug 2004 Posts: 12 Member | | OP Member
Joined: Aug 2004 Posts: 12 | Quick update.
Last week I had two seperate appointments. One with an oral surgeon, who believes what I am noticing is normal in every person, that is slightly relieving. Also the precautionary CT for the lumps in my neck also happend last week. I go for the results of that on Monday at 1:30. I will let you all know what the outcome is. Thank you for your thoughts.
Andy | | |
#26613 08-21-2004 03:04 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | My fingers are crossed for you! I hope all is well; certainly get back to us with your results!
We're praying for good news!
Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#26614 08-23-2004 12:20 PM | Joined: Aug 2004 Posts: 12 Member | | OP Member
Joined: Aug 2004 Posts: 12 | Well I went to the Dr's today and got the results of the cat scan I had last week. He said they were all clear. The lump in my neck he said doesn't concern him either. The bump on the inside of my lower teeth is Tori (sp?) and it isn't something I should worry about. He said he does want to see me in 3 months just to follow up with him. This was the 7th dr I have had examine me in the last couple months so I guess I am going to trust the medical proffession at this time. The alergy medicine and acid reflux medicine does seem to be helping a bunch do I felt a great sense of relief after today's meeting. I wanted to thank you all for your suggestions, thoughts and prayers over the last few weeks. I will continue to pray for each and everyone of you. After the rounds of emotions I have had over the last few weeks, reading this forum has really helped. Thanks for all that you contribute to it.
Andy | | |
#26615 08-24-2004 01:28 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Good news Andy, thanks for sharing, and God BLess You! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#26616 08-24-2004 06:53 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Andy,
I hope that this is your wake up call for stopping the tobacco products for good. You may not be so lucky next time. As comforting as it can be here at times on the boards, this is a club I would rather have not joined.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#26617 08-24-2004 09:36 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | What a wonderful piece of news for you and your wife, Andy  At the very least, after all this, you will be very aware of what your body is telling you, and hopefully you'll encourage all your friends to make sure their dental and physical check-ups include a good oral exam. I can't seem to tell enough people about that right now - - and luckily, because they know I am not an alarmist, they are listening! Good luck to you! Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#26618 08-24-2004 10:35 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Very Good news Andy! Tori are bony growths that appear over time. They are harmless unless they get large. They can be surgically reduced. Take good care and now you know a lot about oral health. If the comfort you recieved here is valuable to you please consider a donation! (tell your family and friends too)
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#26619 09-17-2004 12:51 AM | Joined: Sep 2004 Posts: 1 Member | | Member
Joined: Sep 2004 Posts: 1 | Andy:
I have been a smokeless tobacco user for over 17 years and never really thought about the consequences. I now have two children and have realized (finally, I hope) that I need to take care of myself, if not for me then for them. About 4-5 months ago I was getting soreness on both sides of my tongue and started paying attention, more closely to my tongue and oral area. I could definitely see mucousal damage along with leukoplakia, erythtoplakia, and excessive thrush on the tongue. I started feeling around my neck and jaws constantly. I felt bumps, abnormalites, pains and tinges I had never noticed. I could not keep my focus. In fact, I was a nervous wreck. I would see white spots on my tongue and think the worse. My DR referred me to an ENT (on my request, not his). After an initial visit and follow-up, the ENT assured me that I did not have cancer. It came down to that I was looking for something that was not there....made myself believe it.
Dan | | |
#26620 09-17-2004 08:52 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Way to Go Dan..so glad to hear you finally found your brain....enjoy your smoke free life with these two great kids.
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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