#26375 05-07-2004 04:32 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Carol
sorry... the plan was to laser off the crazy cells .. high grade dysplasia..(third time) but it's all in the wrong place and the area is to big... back of tongue and tonsil area.. so out it all is to come and a flap to go in.. posted my results from the biopsy on the 19th of April thought that was it all sorted... should have known better..
I liked plan a.. oh well..
love and hugs
thanks
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#26376 05-07-2004 04:59 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Well, Helen, you know I`m just looking for a good reason to come to England...........so just let me there and I`ll hop on the big bird and join you......Love and Hugs...........W.W.N. | | |
#26377 05-07-2004 05:23 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Helen,
I am sorry to hear of your news. I know it is not what you expected or wanted. Are the talking partial glossectomy? I know it is difficult but try to not climb the walls right now. You actually have a bit of a breather for about 2 weeks or so. How much of the red wine does Spain produce? Just a thought. My prayers and love coming your way!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26378 05-07-2004 06:17 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Helen, Sorry you couldn't have had plan A. I would have preferred that myself. My son's LAX team is coming over there this summer, we had them visit us last summer and the summer before that, my husband and son went with the team to England, had a great time....visited Wales, my oral surgeon is from there. My son is not making the trip this summer tho, hurt himself playing, needs to heal up, etc. God Bless You!!!I am thinking of you and praying!!!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#26379 05-07-2004 06:49 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Helen-
Hang in there during this disappointment and know that we are holding you up with a lot of prayers!!! Enjoy a few goodies before the big day and promise yourself a big reward when this is over! A picture of a special trip or holiday after treatment sometimes helps get over the low spots. Stick some pictures of Las Vegas on your frig!! We'll give you a big hug when we see you there! - Love Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#26380 05-07-2004 07:25 AM | Joined: Apr 2004 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 33 | Maria - I had the biopsy taken from my tongue on Feb 12th. I tried really hard to convince myself it was nothing serious -- plus it was so darny busy at work that helped to distract me. I go the diagnosis at 4pm on Feb 19th. The dental clinic at Sunnybrook hospital (Toronto)called to ask if I could come in because the dentist's schedule had changed. That's when I knew. But both dentists I saw that day (BTW both were women) were wonderful and positive. Plus I work for the Ontario Dental Association and I already knew all the stats. They already had an appointment set up for me at the regional cancer centre the following Trusday morning. Funny enough, the next day I was leaving for a 3 day cruise from Miami to Nassau with my sis and another friend. I have to admit, while it wan't the best vacation I've ever had, it sure beat hanging around the house thinking. You see, I'm a Libra, and we think way too much. Plus the food was really good. And even though my tongue hurt at this point I did manage to eat everything I ordered including the drinking the wine. Too bad you can't book a last minute trip to take your mind off this until next week. | | |
#26381 05-07-2004 08:12 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Maria,
Someone once told me Mother Theresa said, I know God doesn't give you more than you can handle, but sometimes I wish he didn't trust me so much. People often say to me, "you are so strong" they don't see me at home and no one knows what they can come through unless they have walked that path. We've all had really hard times, but with friends and family that just want you around no matter how you talk, eat, or what you look like helps me everyday.
We here for you!
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#26382 05-07-2004 08:26 AM | Joined: May 2004 Posts: 10 Member | | OP Member
Joined: May 2004 Posts: 10 | Helen Im sorry things arent working out the way you had hoped, all of you are constantly in my prayers. My doctor just called said the biopsy came back fine, benign lymphatic tissue. They are mailing me the results so I can post them. I still have to go to the ENT on Tues. because of the growth in the back of my throat (dont know if its a tonsil or not since they were yanked over 40 years ago), the oral surgeon who did the biopsy of my tongue said he could only go back as far as my molar, that the ENT has to look at this. I guess what Im asking is this: Since this growth on my tongue came back good, is that better odds that the growth in my back of my growth is benign too? I know you dont know til it is actually biopsied, but just thought I would share. I dont know how all of you stand it, each and everyday, the waiting, the not knowing, but in the end, I guess thats LIFE...Looking forward to hearing from all of you... Just a question, I have seen a post of everybody getting together soon, God willing my other biopsy comes back benign, but would still love to meet all of you if that is possible. You are truly an inspiration. I am currently part of an organization for Cystic Fibrosis which my niece had, who passed away two years ago and would love to find a way to help out with fund raising or awareness or whatever needs to be done to get the word out about oral cancers. If anybody has any suggestions, I would love to hear it. Thank you... | | |
#26383 05-07-2004 08:33 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maria,
I am glad your results came back benign! I hope you have as good a report on the other growth. I don't know about the others but you certainly would receive a welcome hug from me!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#26384 05-07-2004 08:43 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Maria,
This is really great news. I love to hear it! Thanks for getting back to us so quickly.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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