#24458 10-05-2007 08:44 PM | Joined: Oct 2007 Posts: 2 Member | OP  Member
Joined: Oct 2007 Posts: 2 | Hello All,
I have been diagonsed with Malignant Melanoma in my left part of the tongue on July 2007. I have undergone a major surgery to remove 2/3 of my left tongue.
I am worried about the possibility of the recurrence for this disease.
Can anyone help to know the followings:
1. Is there any medicines for this cancer.
2. Is there any advanced treatment like Stem cell treatment for this cancer. | | |
#24459 10-06-2007 08:23 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | hi muru and welcome.i dont have the answers you need but i am sure someone will
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#24460 10-07-2007 01:14 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Muru: Welcome to OCF...Your dx is unfamilar to me, but I hope someone here can help you. I am posting in order to keep your thread current. Good luck to you!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#24461 10-07-2007 02:09 PM | Joined: Oct 2007 Posts: 5 Member | | Member
Joined: Oct 2007 Posts: 5 | Muru. Recurrence is also my biggest fear. I'm not sure about your cancer either but I know how you feel. The doctors tell me the statistics of recurrence for my caner all the time. I need to hear some good things sometimes. Good luck.
ACC stage 2 in lateral nasal wall, Craniotomy and Rhinotomy 5/15/07. IMRT started 8/30/07. kimberly mitcham
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#24462 10-25-2007 03:01 AM | Joined: Oct 2007 Posts: 14 Member | | Member
Joined: Oct 2007 Posts: 14 | Hi Muru. I am cancer free now for 2 years. I also had part of my tongue cut off. Never give up hope!
Thomas in Calgary,AB
T2N0M0 Residual Squamous Cell Carcinoma, Hemi glossectomy. 25% of right side tongue removed. Forearm flap, Tracheotomy, Neck dissection, Mandibular osteotomy. Oct. 3-2005 +
30 rounds of radiation and no chemo. No smoking and drinking.
| | | | | Joined: Oct 2007 Posts: 2 Member | | OP Member
Joined: Oct 2007 Posts: 2 | Hi All,
I was free from Cancer for the last 5 1/2 years. But Unfortunately, Now I got the recurrence of Melanoma now in SupraGlottis area.
Again doctors are advising the major surgery for this recurrence.
Whether anybody has faced similar Cancer recurrence in this area? If So, what
1. What will be the impact of the surgery in this area.
2. Will I lose all my voice completely.
3. Do we have any other better treatment to make sure that this will never recur again
4. Which is the best hospital in the world to treat Melanoma
5. How can we ensure that this will will never recur again.
I am waiting for the guidanace from you friends.
Thanks,
Muru
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The questions you have asked are difficult to answer. We are not medical professionals with many years of medical training and experience to help give answers. We also do not know your medical history which your physicians have in front of them.
The area you have mentioned is right above the larynx. Do you have Malignant Melanoma or Squamous Cell Carcinoma? How were you treated back in 2007? Most members here have had SCC oral cancer so thats what we are most familiar with on the forum. As far as SCC oral cancer goes the treatments to eliminate the cancer are surgery with clear margins, radiation with or without chemo. Chemo is used as a booster to help make the radiation more effective with killing cancer cells.
As with any treatment for any disease, alot depends on the skill of the treating physician. The best advice I can give you or any other patient is to find the best medical care in your area with the most experienced physicians to treat you. If you are unsure of their capabilities or even to help make your decisions, seek out a second or even third opinion from other top medical professionals.
I would suggest you ask your physicians the questions you have written for our members. Hopefully your cancer was found early and treatment will enable you to keep your voice. But even without it, you can still live a productive life. Much better to be alive with handicaps or limitations than not to be here at all. At least thats my way of thinking. I live with facial disfigurement and other daily issues but am able to stay active and positive about my situation.
Each treatment facility will say they are the very best available but thru research you will be able to find what places are rated as the best in treating cancer. Here in the US, we have several top cancer centers. Im sorry but I do not know what is available in your country. We do have several members from your country who may be able to advise you as to what facilities are the best.
Wishing you all the best Muru!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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