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#23908 07-26-2007 12:30 PM | Joined: Jul 2007 Posts: 3 Member | OP Member Joined: Jul 2007 Posts: 3 | Anyone survive mucosal melanoma? Its normally a very aggressive cancer with poor survival rates, but for some reason it has not metastsized to the lymphs in me. I was first diagnosed 2 years ago,at 48, but may well have had the cancer for a year or two before that, as I had several periodontal procedures before the cancer was diagnosed. I have had high fraction radiation and 3 resections of the gum, and a small part of the bottom of my tongue removed, and may be headed for a 4th procedure. Inspite of this I continue to feel well and vital, and not the least bit sick. While normally this type of cancer spreads quickly, so far it has not in me. It is sobering to read the info on the web about this, and my doctor assures me I am not the typical case of this kind cancer. 5 year survial rate are something like 10%. Anyone else in that lucky 10%?
Michael Ballon
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#23909 07-26-2007 12:43 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Michael
You seem to be blessed thus far. I've not seen anyone post a message about this sort of cancer, maybe there is someone out there who will come along soon. I hope you stay blessed.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#23910 07-28-2007 06:13 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Michael,
Congratulations on doing so well with such a rare cancer. I have read about this and although I have never seen a patient with it, I have suspected it in a few patients several times. Fortunately, none turned out to be cancer.
Thank you for sharing your story and I wish you continued good health.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#23911 07-28-2007 10:46 AM | Joined: Jul 2007 Posts: 3 Member | OP Member Joined: Jul 2007 Posts: 3 | Thanks. It is considered extremely rare and unusual, and I figured if there was anyplace to find out more info on this, it would be on this oral cancer web site. My doctor says we're in a realm where there isn't much hard science, and we're relying on instinct and art. There's a weird disconnect between being diagnosed with such an aggressive cancer for so long, yet continuing to feel so well, wondering if the other shoe is going to suddenly drop.
Michael Ballon
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