#22343 02-20-2007 08:15 PM | Joined: Jan 2007 Posts: 2 Member | OP  Member
Joined: Jan 2007 Posts: 2 | Hi, I'm new - diagnosed just before Christmas with oral cancer - had surgery end of January to remove tumor on tongue and lymph nodes. Two nodes tested positive - so now stage 4. I start chemo and radiation next week at University of Washington. I was really happy to find this site, I have so many questions and concerns, and its wonderful to know that there is somewhere not only I can come, but also my family.
Stage 4 squamous cell carcinoma of tongue: Diagnosed Dec 2006, Neck dissection (right side) Jan 2007 with partial removal of tongue. Radiation and Chemo (Cisplatin), New primary 11/2008, neck dissection (left side) June 2009, laser ablation August 2009.
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#22344 02-20-2007 10:01 PM | Joined: Jan 2007 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 50 | Hi winmis,
Sorry you had to land here, but you will find a lot of information on this web site and in this forum.
Look through some of the older posts as well and use the search function to find specific topics you are interested in. This site has helped me prepare for what lies ahead in the coming weeks as my husband begins his therapy.
He had his first radiation treatment today and his first chemotherapy treatment will be Thursday.
He also has Stage IV, base of tongue cancer.
Good luck to you and your family and come here often because it is comforting to find all these survivors here! They are all so supportive
Vicki
Care giver for Stage IV Base of Tongue TXN3M0
Neck Dissection 1-9-07
IMRT & 8 weekly Cisplatin
2/20/07 - 4/17/07
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#22345 02-21-2007 01:43 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Good Morning Winmis! They'll take good care of you at the UW and this comes from a Cougar! I am a Stage 4 survivor now 4 years/5 months from end of treatment and between the facts and survivor hints you'll find on this site plus the staff at radiation at the UW you'll make it too! I'm in Federal Way, drop me an email if you want to chat or your caregiver needs a shoulder from my RN husband caregiver! We made it and so can you! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#22346 02-21-2007 03:20 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | Hi Winmis,
I had a similar case but was only stage 3. Surgery and radiation were my treatment so I can definitely help answer questions about those if you need help.
Take care and fight hard.
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
| | | | | Joined: Jan 2007 Posts: 2 Member | | OP Member
Joined: Jan 2007 Posts: 2 | Hi Kris, I finally found my way back to this site after 2 1/2 years - four surgeries, chemo and radiation. Now I have discovered another nodule in my neck and will head back to UW in the AM for an evaluation. I went 18 months after first surgery, and have had three since last Nov. I am hoping your are still doing well - have you had more treatment also. Or is this a really bad sign that this keeps turning up. I surgery was another tumor, Dr. said it was a new primary. Next was lymph nodes in opposite side of neck. Last was laser oblation of area that tested positive on surface for squamous cell.
Peace to all of us who are dealing with this big Fear Factor!!
Stage 4 squamous cell carcinoma of tongue: Diagnosed Dec 2006, Neck dissection (right side) Jan 2007 with partial removal of tongue. Radiation and Chemo (Cisplatin), New primary 11/2008, neck dissection (left side) June 2009, laser ablation August 2009.
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Sorry to welcome you back and to meet you this way. Good Luck with your appointment tomorrow. I'll be thinking of you.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Winmis and welcome back to OCF. Sounds like you have had a hard time these pastcouple of years. I'm glad you found your way back to the forums...you will find wonderful support. Please let us know how everything went with the doctor.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Welcome back. How did your appointment go? I am sure you know that this place is awesome for support and encouragement.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | Anybody get a reply on how Winmis's appointment went?
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hate to say it again, but welcome back home winmis. I hope you keep this stuff at bay and whip it's butt a again. Don't forget to post as you go. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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