#22095 02-01-2007 01:01 PM | Joined: Jan 2007 Posts: 11 Member | OP  Member
Joined: Jan 2007 Posts: 11 | hi everyone,
My name is Raymond.
I am 35 married for 5 years with one 16 year old step son.
I am from knoxvill tn.
I was dx with SCC on 1-24-06.
the DR's told me that they would be removing all my top teeth but on on the right side and leaving two on the left side.they will also be removing the tissue across the front of mouth and the bone up on top also the top pallet.he told me that i would have a obturator in my mouth after surgery but it wont work that well becaulse the hole would be bigger than normal since so much has to come out. went wed for PET/CT scan and that I will Know the results of that tue.my surgery is set for 2-22-07.if anyone has had this type of surgery please let me know.
and if anyone has anything to ask me fill free to do so.hope to get some info find some support and make some long life friends.
keep up the fight and my god bless you
Raymond
RAYMOND--StageIV T4MO scc dx'd
1-24-07 surgery set for 2-23-07
full removel of top jaw bone,partial palatectomy'neck dissection,removel of two lymp nodes,all clear,waiting on chemo and rad to start.
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#22096 02-01-2007 01:28 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Raymond,
Welcome to the site. It will be extremely valuable to you like it has been for all of us.
What cancer center will do your surgery and treatment? Have you gotten second opinions? What Tx are they talking about post surgery?
I did not have the surgery you are comtemplating but I'm sure others will post their experiences.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22097 02-01-2007 03:43 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Just for the record....in case others are seeking fellow maxillectomy/palatectomy patients....Raymond and I have already "met" and have been in touch. There are several others on the forum also. If others are out there, please "raise your hands." This seems to be a fairly small club.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22098 02-01-2007 11:12 PM | Joined: Jan 2007 Posts: 11 Member | | OP Member
Joined: Jan 2007 Posts: 11 | HI david,
Thank you for reaching out to help me and hoply becoming a friend. Here are a few answers to the questions you ask.
1) I am having surgery at the university of tennessee ( Department of oral & maxillofacial surgery ).BY DR Eric R.Carson,DMD,MD.oral surgery and oral cancer is all that he deals with.
2)No I have not had a second opinion. he told me that they were'nt anyother opp but surgery. Do you think I should get one. I am scared that if I wait to long talking to other DR's that my cancer will spread worse and they will have to remove more of my face.he said that it had done gotten into the bone thats why I have to have surgery instead of just treatment any thoughts on that?
3)As far as post surgery tx he did'nt say but I will ask him when I see him tue when he talks to me about the results of my PET/CT scan.
IF you can think of anything eles please let me know or if you need someone just to talk to fill free to email me or i will give you my #
Well need to run for now remember that god loves you and each and every member here loves you keep up the fight.
Raymond C
RAYMOND--StageIV T4MO scc dx'd
1-24-07 surgery set for 2-23-07
full removel of top jaw bone,partial palatectomy'neck dissection,removel of two lymp nodes,all clear,waiting on chemo and rad to start.
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#22099 02-02-2007 02:31 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Raymond, my thoughts and prayers are with you, please keep us posted on what is happening with you....Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#22100 02-02-2007 03:41 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Raymond,
Welcome and sorry you have to be here. I am new here myself and was diagnosed on 1/22/07, not the same as yours , but If I can say one thing is that the people here have the most comforting and encourageing words, as well as the are very open and truthful about there experiences, which I myself find helpful. I also am here if you need to talk you can email me but i dont have alot of answers cuz I myself and new and have a different diag, But I am here to listen I know the whirlwind your mind is in we all do. Best wishes on your upcoming surgery and keep us posted!!!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22101 02-02-2007 06:43 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Sharlee.....You are a wonderful example of why this site is so wonderful: Here you are, a brand-new cancer patient, reaching out and offering support to someone else. That's beautiful!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22102 02-03-2007 03:45 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Raymond - My son who lives in Knoxville is also a patient of Dr. Carlson's and really likes him a LOT (as do I). Dr. Carlson is a specialist in oral & maxillofacial surgery and although my son's cancer was not the same as yours, the cancer center at UT Medical Center has a whole cancer team of doctors that get together to decide the best course to take. A second opinion is always good, especially if it can ease your mind and helps you to make sure you have made the right decision. All the people in Dr. Carlson's office are really wonderful and caring and very compassionate. I'm sure they would not be offended if you asked them about referring you to someone who could give you a second opinion. Not knowing and just waiting for results of the PET/CT scan can be so hard but try to hang in there. You could bring someone with you when you get the results. My daughter and I went with him and it helped all of us. Also, you could have someone take notes to make sure you get everthing in case you have questions later. I'll be thinking of you and sending positive vibes your way.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22103 02-03-2007 06:31 AM | Joined: Nov 2006 Posts: 8 Member | | Member
Joined: Nov 2006 Posts: 8 | hi raymond. the 2nd opinion is of course your decision, but i have nothing but good things to say about dr. carlson and the whole team at UTMC in knoxvegas. as far as surgery goes, its a peice of cake compared to radiation therapy (for me anyway). i would rather have a thousand surgeries than repeat radiation treatment... sorry thats not a ringing endorsement for radiation but.. regardless of the treatment or outcome of the surgery; having someone to help will make all the difference... fwiw, i was secretly hoping the dentist will want to remove a bunch of teeth; so i can get dentures, that way i can ask for fangs to be molded into them... that would be cool. | | |
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