#2079 03-22-2004 03:15 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi All, It is not vanity that brings me to post this but instead to ask all of you to get your picture up in the profile section. If you click on my name you will see my profile, and my newly posted picture (or at least somebodies picture I want you to think is me  ) You have to get a digital picture of yourself and contact your Internet Service Provider to get it made available as a URL. OCF does not provide the space for that on it's servers. A couple of hints the picture should be fairly small and less than around 50kb in size. I wouldn't mind seeing all of you folks out there even if you have a face for radio! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2080 03-23-2004 01:06 AM | Joined: Aug 2002 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2002 Posts: 76 | Mark, nice picture, I need to get one up of Dan, he doesn't like how he looks in pictures. He has a right radical neck dissection, and I forget the name but he has a scar from his lip over to his neck, they broke his mandible ? to get to the tumor....
I like seeing a face attatched to a name!!!
Have a good day Mark.
Sherrie
Sherrie wife to Dan, Tonsil cancer survivor, Stage IV diagnosed July/2001
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#2081 03-23-2004 03:18 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ha! I had my wife take about 15 shots before I got that one, no matter how many she took, I didn't look like Mel Gibson. I guess I'll get used to it! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2082 03-23-2004 07:54 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Mark! Great picture.............this is a super idea. Now, to figure out that URL thingy Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#2083 03-23-2004 09:42 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Mark, what a great picture!!!!!!! You look wonderful, it is nice to put a face with the postings. Thanks!!!!!!!!!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2084 03-23-2004 10:52 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Mark.....................Mel has NOTHING on you hon! Awesome idea and it makes me feel like I know you. Thank you for that.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#2085 03-23-2004 06:01 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | You know flattery Will get you everywhere! OK so I'm not Mel, (he is older than me anyway) Thank you all for the kind words! I will make myself avaliable to help get your own picture up if you want just ask or e-mail me direct. Until we have our reunion, pictures will have to do. By the way, that picture is "scar side up". (actually I was surprised how little it shows)
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2086 03-24-2004 11:58 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Thankyou Mark, you look so well. Its good to put a face to your informed posts. Helen, with love
RHTonsil SCC Stage IV tx completed May 03
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#2087 03-24-2004 05:47 PM | Joined: Jan 2004 Posts: 20 Member | | Member
Joined: Jan 2004 Posts: 20 | Hey, nice looking fella Mark....When I see my scars from my ear to under my chin and then across my collarbone, I wear them proudly now as it is 5 yrs cancer free this coming July....When I think of where I've been in this journey and how far I have come as hard as it is somedays, I thank the good Lord for every new day he gives me at 61 yrs of age. I think it has taught me alot about life and other people. Between looking like Herman Munster with staples, a nasal feed tube and a trach, I can now sit back and sort through what I lived through. I had a lot of good Dr. and hospital advice on what to eat and ways to eat it....The nasal tube became a "G" tube for quite a while due to radiation but I got through that too...It is wonderful to read so many notes in here of survivors and their great outlooks...Congrats to all...Flo | | |
#2088 03-25-2004 09:54 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | I can't believe how great you look! I'm still bald and scarred. Your picture gives me hope for a more normal looking future.
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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