#2079 03-22-2004 03:15 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi All, It is not vanity that brings me to post this but instead to ask all of you to get your picture up in the profile section. If you click on my name you will see my profile, and my newly posted picture (or at least somebodies picture I want you to think is me  ) You have to get a digital picture of yourself and contact your Internet Service Provider to get it made available as a URL. OCF does not provide the space for that on it's servers. A couple of hints the picture should be fairly small and less than around 50kb in size. I wouldn't mind seeing all of you folks out there even if you have a face for radio! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2080 03-23-2004 01:06 AM | Joined: Aug 2002 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2002 Posts: 76 | Mark, nice picture, I need to get one up of Dan, he doesn't like how he looks in pictures. He has a right radical neck dissection, and I forget the name but he has a scar from his lip over to his neck, they broke his mandible ? to get to the tumor....
I like seeing a face attatched to a name!!!
Have a good day Mark.
Sherrie
Sherrie wife to Dan, Tonsil cancer survivor, Stage IV diagnosed July/2001
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#2081 03-23-2004 03:18 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ha! I had my wife take about 15 shots before I got that one, no matter how many she took, I didn't look like Mel Gibson. I guess I'll get used to it! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2082 03-23-2004 07:54 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Mark! Great picture.............this is a super idea. Now, to figure out that URL thingy Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#2083 03-23-2004 09:42 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Mark, what a great picture!!!!!!! You look wonderful, it is nice to put a face with the postings. Thanks!!!!!!!!!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#2084 03-23-2004 10:52 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Mark.....................Mel has NOTHING on you hon! Awesome idea and it makes me feel like I know you. Thank you for that.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#2085 03-23-2004 06:01 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | You know flattery Will get you everywhere! OK so I'm not Mel, (he is older than me anyway) Thank you all for the kind words! I will make myself avaliable to help get your own picture up if you want just ask or e-mail me direct. Until we have our reunion, pictures will have to do. By the way, that picture is "scar side up". (actually I was surprised how little it shows)
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2086 03-24-2004 11:58 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Thankyou Mark, you look so well. Its good to put a face to your informed posts. Helen, with love
RHTonsil SCC Stage IV tx completed May 03
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#2087 03-24-2004 05:47 PM | Joined: Jan 2004 Posts: 20 Member | | Member
Joined: Jan 2004 Posts: 20 | Hey, nice looking fella Mark....When I see my scars from my ear to under my chin and then across my collarbone, I wear them proudly now as it is 5 yrs cancer free this coming July....When I think of where I've been in this journey and how far I have come as hard as it is somedays, I thank the good Lord for every new day he gives me at 61 yrs of age. I think it has taught me alot about life and other people. Between looking like Herman Munster with staples, a nasal feed tube and a trach, I can now sit back and sort through what I lived through. I had a lot of good Dr. and hospital advice on what to eat and ways to eat it....The nasal tube became a "G" tube for quite a while due to radiation but I got through that too...It is wonderful to read so many notes in here of survivors and their great outlooks...Congrats to all...Flo | | |
#2088 03-25-2004 09:54 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | I can't believe how great you look! I'm still bald and scarred. Your picture gives me hope for a more normal looking future.
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#2089 03-25-2004 05:51 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Phew....Mark, you look wonderful!!!!
I may need some help, but I would love to get Dennis' picture up.
You are kicking this beast right where it needs it!
Love,
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#2090 03-26-2004 09:07 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Mark
Nice seeing a face with the name. You look great and in good shape! Thanks again for all your support. It's been 3 weeks from my radiation and I'm feeling better but still a lot of pain eating, hope that quites shortly. Still a little fatigued which I guess it cought up with me, I wasn't fatigued until the 5th week of treatment. I'll see if I can follow your instruction to get my picture up.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#2091 03-26-2004 09:32 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Sherrie, Judy, Carol, Minnie, Helen, Flo, Lynn, Mandi, and John! Thank you ALL! Lynn, I didn't get chemo so I didn't loose any hair. For those early on in their recovery, our new pastor (base of tongue full radiation) is running marathon races 1 year out of treatment! There is some inspiration!!!! John, good to hear from you. P.S. I am not the first to have their picture up either Brian and Glenn (GRE1) and perhaps others can be seen too. P.P.S. I was waiting to see if anyone noticed the picture in the backround of my photo. (not the tugboat either) It's me at age 11 holding a Smelt (fish from Lake Superior) It was published in the Duluth paper front page 1972.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2092 06-07-2004 06:18 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | I am reviving this thread because Brian has announced that OCF will help with posting pictures QUOTE BRIAN: "By the way, if anyone wants to add a picture of themselves to their profile, just send a jpeg of it to [email protected] with a note and Chester can see that it is added to your profile. There is a way to do this yourself, but if you are not a computer savvy techno nut, it may seem a little complicated. I think I will ask Chester to post the instructions on how to do it the next opportunity he gets, but his time doesn't cost us much and if anyone wants help doing this, so don
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2093 06-07-2004 11:25 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hey Mark - nice picture of the fish! Oh, and, of course, what a great picture of you! You look great and it's nice to put a name with a face. I take horrible pictures (and I'm not kidding) but if I come across or have a decent one taken, I'd be happy to post it. Thanks Brian and Chester for your offer of help in posting pictures. Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#2094 06-08-2004 05:20 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Just send them as .jpeg files. If they need cropping etc. I can do that for you in Photoshop before sending them on to Chester. Please do not snail mail any real pictures to the foundation, they will get lost in the shuffle. It may take a week or more, as Chester is swamped with real full- price paying customers work, and I am doing my usual....feeling like a one-legged man in a butt kicking contest...but we'll get to them.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2095 06-08-2004 01:05 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | I am thinking actively of uploading my photo on the forum but since I am a computer idiot, I have to seek help from experts first. By the way, how do we know which member has already included their photo in the profile so that we can take a look?
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#2096 06-08-2004 05:30 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Photos, email addresses etc. are all found when you click the first icon next to the date of someone's posting
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#2097 07-05-2005 06:28 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Just reviving this post thread because I would like to see more people post their pictures.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#2098 07-06-2005 03:18 AM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | I don't have any pictures "post-surgery" yet. I will get on that and get one posted, as it's really nice to put a face with the posts. Thanks for reviving this Mark!
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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#2099 07-06-2005 06:17 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | I put mine is there but all it shows is the link.  I know its a good url because I use a pay service for my forum. Do I need to add the image tags around it or what? Blessing and love, Barbara~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#2100 07-06-2005 06:20 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Well the "image" tags do not work in the post so here is the URL of my picture. I am having a bad hair day too so what can I say? LOL http://www.imgmag.org/images/victory/cdsolblinkies/mee.gif
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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