#20710 07-17-2006 10:20 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Jul 2005 Posts: 207 | Mr Moe,
Keep us informed and keep in contact. You can beat this thing.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#20711 07-31-2006 01:10 PM | Joined: Jul 2006 Posts: 12 Member | OP Member Joined: Jul 2006 Posts: 12 | WELL TOMORROW 08/01 IS MY DAY FOR THE RADIATION PREP AND IM GETTING A FEEDING TUBE PLACED IN THE STOMACH, MY CHEMO AND RADIATION STARTS ON MONDAY AUG 7TH, ILL TRY TO KEEP EVERYONE POSTED.
squam cell carcin base of tongue 5 out of 33 lympth nodes effected & removed w/ neck surgery on 6/27/06 33 treatments of IMRT & 2 cycles of cisplatin
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#20712 07-31-2006 02:52 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi, Mr. Moe, I am glad to hear you are getting a tube just in case you need it. Hope the radiation prep goes smoothly for you. Can you get your wife to join us here when your chemo\rad tx. starts next week? You may not feel like communicating alot and she can tell us how you are dong. PLUS, she might need a little hand holding as well] Sending Best Luck to you as you proceed. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#20713 08-16-2006 03:56 AM | Joined: Jul 2006 Posts: 12 Member | OP Member Joined: Jul 2006 Posts: 12 | well now lets see where i can start, i had my peg tube placed in me on 1st of Aug and for the next 5-6 days after that i was in pain from the infection that i had got from around the peg tube. I was placed on antibotics which pushed my chemo treatment back because of the infection. So i started my radiation treatment on the 9th of Aug and im starting my chemo today (im sitting here now with the IV in me getting the chemo) thank god for my laptop. so they have me getting chemo today , tomorrow and fluids on friday and then coming back for chemo again on Sept 6,7 & 8th and 33 treatments of radiation, hope all is doing well and ill stay in touch as the time goes on
squam cell carcin base of tongue 5 out of 33 lympth nodes effected & removed w/ neck surgery on 6/27/06 33 treatments of IMRT & 2 cycles of cisplatin
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#20714 08-16-2006 06:23 AM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | you're right, laptops help when you're spending the day in the IV room. Glad to hear the infection cleared up and that you've started your treatments. Delays are nerve wracking. Drink 2-3 quarts of water daily, use your PEG tube if you need to, but the fluids really helped Jack combat nausea following chemo. He had some thru his port in addition to by mouth and the PEG. He also used his anti-nausea medications every day. This too shall pass...what kind of chemo are you getting? Jack is 3 months post radiation and just had his PEG tube removed last week - he thinks it was a lifesaver during treatments. Hope everything goes well for you. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#20715 08-16-2006 05:55 PM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2004 Posts: 155 | Mr Moe Now you are into it and fighting it! Glad you found this site, There will be many bumps in this road and it will seem very long at times but you will make it through. Get as much nourishment and hydration as you can. As things come up ask. BE STRONG. Did they decide on the rads? Bob had traditional radiation and two years out can spit with the best of em ok maybe not the best of em but he can spit most days. Peace Denise
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04 Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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#20716 08-21-2006 11:45 AM | Joined: Jul 2006 Posts: 12 Member | OP Member Joined: Jul 2006 Posts: 12 | Well im back after having my chemo last week, tomorrow is my 10th dose of radiation treatment to my throat area and i have 23 more to go and im feeling the effects already :-( hopefully with some meds it wont be so bad, the side effects from the chemo hasnt been so bad yet but im not completely out of the woods yet, still have more chemo on sept 6,7 & the 8th. hope all is well and i'll be back soon
squam cell carcin base of tongue 5 out of 33 lympth nodes effected & removed w/ neck surgery on 6/27/06 33 treatments of IMRT & 2 cycles of cisplatin
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#20717 08-21-2006 12:05 PM | Joined: Jul 2006 Posts: 12 Member | OP Member Joined: Jul 2006 Posts: 12 | oh and by the way eating is becoming a chore now but i guess thats what the peg tube is for
squam cell carcin base of tongue 5 out of 33 lympth nodes effected & removed w/ neck surgery on 6/27/06 33 treatments of IMRT & 2 cycles of cisplatin
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#20718 08-21-2006 01:23 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi. Mr. Moe. Glad to hear you have done well with chemo so far[my husband did too. I think some of the new antinausea meds have helped many people] [the Erbitux is a slightly different animalto deal with] How is your weight holding? There are some good high calorie recipes on this sight that can go down the peg should you need them. Hang in there. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#20719 08-23-2006 03:02 AM | Joined: Jul 2006 Posts: 12 Member | OP Member Joined: Jul 2006 Posts: 12 | Hi Jam, nice to hear your husband is doing good also, so far i lost 14 pounds but i think that was the weight from me eating out 24/7 and all the junk food i was putting in my body plus when i had the infection from the peg tube that messed me up for about 5 days where i didnt eat at all. But tomorrow is my apoointment with the nutritionist so i should be on track about what to eat and what i can shove down this peg tube. Well as always i wish everyone a speedy recovery
squam cell carcin base of tongue 5 out of 33 lympth nodes effected & removed w/ neck surgery on 6/27/06 33 treatments of IMRT & 2 cycles of cisplatin
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