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#197922 03-03-2019 11:05 AM
Joined: Sep 2018
Posts: 9
Jacs Offline OP
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Joined: Sep 2018
Posts: 9
Hi, my brother had a 70% glossoctomy in September 2018. He is still being fed through a peg but takes some drinks orally. Over the past 10 days his face has swollen quite a lot again. We called his cancer team and they said not to worry but you can’t help but worry. Has anybody else experienced this? Many thanks


Jacs
Jacs #197926 03-03-2019 06:38 PM
Joined: Jul 2012
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Joined: Jul 2012
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Jacs,

I’ve had different cancers, but once after my surgery to remove all my teeth (29) my face, mouth and neck was extremely swollen. I called the oral surgeon, and he told me to go to their emergency room, which I was going to do anyway if I didn’t hear back. I was there several days, and given meds to help the swelling . At home, I continued to sleep on an incline in the recliner for several months.

It sounds unusual, and the cause should be investigated, and properly treated, in my opinion. It could be nothing, but at least you looked into it, and can’t be faulted at that!

I hope this helps.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #197929 03-04-2019 11:39 AM
Joined: Sep 2018
Posts: 9
Jacs Offline OP
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Oh thank you so much Paul. That is very kind of you to share your experiences. Much appreciated.


Jacs
Jacs #197938 03-05-2019 11:29 AM
Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

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Posts: 10,507
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Whenever a patient has considerable swelling of the face/neck., etc its always a good idea to take them to the ER. Its always better to err on the side of caution especially when you dont know what the cause for their swelling is. Plus, at hospitals they are equipped and knowledgable of this sort of thing that they know what to do if it would suddenly get worse. Paul is right (as usual smile ) . It could be from an infection which could be a major problem to someone who is recovering from a major surgery.

Best wishes and please let us know how you make out!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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