| | Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2017 Posts: 41 Likes: 1 | I was diagnosed with throat cancer on 3/2/17. Had surgery to remove my tumor. I just had a PET scan and scheduled to start chemo and radiation on 4/6. I just had a feeding tube put in and a port for chemo. This was a shock since most of my life I was pretty healthy! So my journey begins! 7 weeks according to my cancer doctor. I have a good attitude about things. | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Welcome to the forum. I am sorry you have to join our circle of friends, but I know everyone will be there to support you.
It's great that you have a good attitude about the situation even though it's unexpected. It will help tremendously during treatment and in your recovery.
Christine B will probably be by soon to talk to you about hydration and calorie-intake. I would just like to say that you may find the feeding tube a big help in achieving your intake goals. The treatment is thought but you will come through. Take it a day and a time and make sure you keep on doing your favorite activities for as long as you can. Post when you have questions, somewhere there is a forum member who likely had the same problem as you. We are also the shoulder you can lean on.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Al! We will be here to help get you thru your treatments and recovery. Hang on to your positive attitude, it will help get you thru some rough days.
Read and learn about your illness. Being informed helps to make you a strong advocate for yourself. Line up helpers to help you when you hit the rough weeks.
Best wishes with your continued recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2016 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2016 Posts: 46 | Glad you found us Al and welcome. Getting a cancer diagnosis is probably the biggest shock any of us can imagine. It sounds like you have your head screwed on right with a real positive attitude. That can make a big difference in how you react to treatment.
Your doctors are on the ball having your port and peg tube already in place. The feeding tube will become your best friend. Like Christine said, the treatments are tough but they are doable.
I found the people on this forum to be very compassionate and knowledgeable. There will always be someone who has gone through a similar situation and they will share their experiences to try and help you.
Good luck in your journey and keep us informed.
Ed
Edward, 64 yrs
7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node
8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks.
Feeding tube and port.
10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue.
01/13/2016 PET Scan shows no sign of cancer.
| | | | | Joined: Apr 2017 Posts: 41 Likes: 1 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2017 Posts: 41 Likes: 1 | Thank you all for the support! | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Al, Welcome - we're here to help you in any way we can. Please ask any and all questions or just complain! You're among friends.
Sending all positive vibes your way.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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