| Joined: Dec 2012 Posts: 17 Member | OP Member Joined: Dec 2012 Posts: 17 | Has anyone heard from him lately? I'm concerned he crossed the Rainbow Bridge.
"I have always depended on the kindness of strangers."
Blanche, Tennessee Williams' "A Streetcar Named Desire"
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | He was last on OCF on 12/1/15, according to the User List.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | hEllion and I pm'ed each other a few times when he was diagnosed with the recurrence. I lastt heard from him in early September this year. I don't have further news from him.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Nov 2015 Posts: 18 Member | Member Joined: Nov 2015 Posts: 18 | Hi guys. I pm'd with the hellion on January 29th. If it's the same person, they are still figuring the fight. 😊
Wife of a stubborn survivor Scared of the unknown
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | He's been posting every so often to his thread "The Watchful Peace" -- most recently on Feb. 15.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | I'm talking to him and his wife, I'll give him a prod to provide an update. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: Dec 2014 Posts: 55 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Dec 2014 Posts: 55 | I would love to hear from him. I pray he is doing well. I am close behind him in both diagnoses and treatments. Would love the advice and help.
Jeff - 41yrs old/previous smoker SCC buccal mucosa/jaw bone Stage 4 Nov '14 Partial Mandibulectomy with fibula flap, neck dissection Jan '15 Rads x35 Cisplatin x2 Apr '15 PET/CT concerning area Follow up MRI no mass. July '15 PET/CT 11mm nodule in right lower lobe the lung. Oct '15 PET/CT right lung nodule 3cm mass also new left lung nodules Nov '15 erbitux Mar '16 CT tumors are growing again, waiting on next step June'16 hospice had 3 Opdivo infusions trying to regain health
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