| Joined: Nov 2014 Posts: 73 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | I've had treatment for a with both rad and chemo for bot. The worse pain is in my ear. It is constant and intense. A dr said it's pressure from tumor, though he did not look at it. I suspect this is an ear infection going on at same time of treatment. I also have thick yellow Phlem which makes me think this. The ear pain is more intense than any other resulting pain from treatment. Has anyone else have this, am I alone. Any suggestions for relief. I am still able to swallow, I haven't had to use my peg yet. Although my throat is very sore the pain doesn't compare to the ear pain.
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you are in pain, ask for pain meds. It is detrimental to a patient to hurt. If you already have pain meds and they arent working then talk to your doc to up the strength or give you something that will manage your pain.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Larry
Call your doctor to up the pain meds. It could be an infection but my guess its probably from the cancer. My mother suffers with sever pain in her ear also and its from the cancer. I had the call her doctor because she was taking Norco but it wasn't strong enough. Her doctor ordered Oxycotin along with the Norco. Also you can ask for the pain patch that may help you also.
As for the flem I know that is horrible also. It's also bad with my mom to. You can rinse your mouth with baking soda & salt or there is a prescription called Magic Mouth Wash. Call your doctor to order that if you don't have it yet. Nothing really makes it go away but you get some relief.
Get well soon and stay positive Heidi
Last edited by sweetpe1; 11-23-2014 02:35 PM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | The main presenting symptom for Kris was the extreme ear pain associated with his BOT cancer. So I think I agree with your doc that it is pressure from the tumour. If you had an ear infection I would expect you to have a temperature and a purulent/pussy discharge from the ear canal. Listen to Christine. Get some pain meds from your doc. Hope you feel relief soon. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Nov 2014 Posts: 73 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | Where is the best place to place patch?
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Hi Larry, anyplace on the upper body will be ok. Try the top third of your arms, under the collarbones/top of the chest, or on your back at the top . Rotating the sites whenever you change the patch is also a good idea. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Always put the patch on a new spot whenever you put a new one on. I would alternate between upper arms, upper legs and the sides of my stomach. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2014 Posts: 5 Member | Member Joined: Jul 2014 Posts: 5 | Hi Larry, By husband also had ear pain with tonsil/bot HPV+ SCC at time of dignosis. Ear pain went away when treatment started (RAD and chemo). He's post treatment about a month and ear pain is back, along with intense jabbing pain at site of mouth ulcer. Doc scoped him and thinks the ulcer is infected (causing swelling and thus ear pain). Has taken antiboitics for 1 day and already the ear pain has gone away. Explore the possibility of infection.....
husband diagnosed with SCC, HPV 16+ Stage 2/3 in July 2014(tonsil, BOT, some soft palette)
No nodal involvement
Completed 36 Rad and 5 Chemo (CarboTax), Oct. 2014
Underlying Leukemia (Chronic Lymphocytic Leukemia), Diagnosed Feb. 2013
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | I had ear pain also from a cancerous lymph node, level ll, before starting radiation treatment, which was eventually controlled by the pain meds, and few weeks of radiation. Anytime there is pain or continued pain, doctors like to know. I also liked to put the Fetynal patch on my upper chest or shoulder area, with the date marked on it, so I could see it better, not double dose, know when to replace it. Follow prescribing precautions, discarding. These can easily be picked up by pets, or even stepped on after discarding if not careful.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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