| | Joined: Jun 2010 Posts: 38 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2010 Posts: 38 | Hi All!
I am having issues with post treatment back and neck stiffness and moderate to severe pain. I have been going to PT but my latest is they are thinking I have compression fractures in my spine and possible pinched nerves. Has anyone else had these issues? What did you do?
Thanks!
Cindy
'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)
Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness." | | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | My case is far simpler but I do have tightness and occasional cramping along the side of my neck and under my chin, places where the BOT primary and node cancers were hit the most by radiation. I also get a tightness running along the backside of my neck up behind my ear.
I just do a lot of neck and head turning and twisting and bending during the day. Whenever I feel any tightness I just start a short routine to relieve the tightness. So far this working for me.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Sorry for your issues. As far as back pain, pinched nerve, tightness, I have dealt with these in the past, actually since I was 20, including surgery, but not for compression fractures, but herniated discs, others, and would be hesitant to recommend how I was treated or did as being the same in your case. I did have PT as one type therapy, chiropractor, and after a relapse, acupuncture, which for me, at the time, was the best for pain. Maybe it would help to have a proper diagnosis for treatment. To my understanding, compression fractures could be related to osteoporosis or other conditions.
After my treatments, and significant bed rest or confinement, my back issues, shoulder, acted up. The more I was able to move around helped, including pain meds, heating pad, topical ointments, PT, whatever worked I guess, but am cautious in what I do after several surgeries to my neck, and doubt I would see a chiropractor again for any neck manipulation.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2010 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2010 Posts: 38 | Thanks, Paul. I am trying to get a definite diagnosis so I know how to treat it or what to do. Had X-rays, PT, discussed with my local Onco and my Family doctor. Will be going back to Penn and will see if someone there can help.
'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)
Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness." | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Glad to hear that, at least the part about getting the doctors involved.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
