| | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Hey Don,
Thank you so much for motivational reply which works as a charm.
Happy Monday...
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Max,
Thanks man. Your response gave me tons of relief. I am heading to kitchen after this reply to enjoy my favorite food...
It's all about PSYCHOLOGY you possess and the way you welcome this decease. I'de say never fight with it, allow it. Don't fight it, face it with courage and with a changed life style. Faster you adopt change, faster will be recovery with better life...
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I think it was Eckhart Tolle that said "You cannot change what you don't accept". It seems the first reaction most people have when something bad or unpleasant happens is "Oh, No!". But after the initial "Oh, No!" if we can accept the situation, we can be better able to figure out how to deal with it in positive ways. After all, how can you change something if you are still in the "Oh, No!" stage? For me, when my son was diagnosed with SCC, and after the initial shock, I went into fight mode and kept telling myself and my son that we would fight it with everything we had. And with the help of OCF and the great people here, we did! Tomorrow, Paul and I will be celebrating his 7th year of being cancer-free!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Neversmoke,
You need to add your own Signature Line so that readers don't have to go to the beginning of each Thread and learn about you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | David,
Please find new post I added today.
It's all about my first detailed diagnosis by CCC.
Thanks
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2013 Posts: 5 Member | | Member
Joined: Dec 2013 Posts: 5 | Hi Ankur,
Sorry about your diagnosis,
I was also diagnose by the same cancer last month i got surgery done, It was very difficult for me also to know about the same but my Dr. was very sure that he can treat the same.
From where you are going to get surgery done ? Go to a good oncologist with ENT specialization. As I met many oncologist but they all said that I will face problem in speaking but the ENt specialist was very sure that I will be able to speak very soon and now I can speak normally.
Best of Luck
Regards
Naveen
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Hello Ankur,
You are totally right - just be positive at all times and your soonest recovery is assured!
I wish you a Merry Christmas and a Happy New Year, and of course, have an excellent recovery after your surgery in January!
Max
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | ff
Last edited by Max1987; 12-23-2013 03:14 PM.
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Nov 2013 Posts: 33 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Nov 2013 Posts: 33 | Hi Neversmoke. This is my first post after surgery on Dec. 31, 2013. I was on the 12th floor of Vancouver General looking north over Granville Island, downtown, and the North Shore Mountains. Interesting fireworks from 10:00PM through to 5:00AM!
I had two biopsies, six months apart, before the second was confirmed as cancer. S#!t happens. Anyway welcome to the forum, sorry you are here, but if you have time, read everything in every post and the replies. The wisdom on here is encyclopedic.
Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain
Al Bx on spot, strip, and vocal cords, lab rep benign
Oc 24 Surgeon follow-up, larger Bx req'd
Oc 25 Bx bits to Vanc. Cancer lab
No 14 MD said more ca investig'n req'd
No 19 Prince George CC, MRI & CT
No 20 PGCC Oncol says cancer
De 2 Vancouver Cancer Centre, PET/CT
De 31 VGH partial glossX + ex spot on vocal cords
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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