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Joined: Dec 2013
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stage 3 no nodes HPV 16 small tumor base of tongue with sunmucosal tail. Was eating pretty good since finishing eggs pancakes and steak even. The last two weeks I seem to be getting a new problem where I choke on liquid all early morning and cant seem to eat anything solid seems to be getting stuck, Also feeling of liquid splashing up into my nose. As the day goes on I seem to get better and can eat all foods. Very little saliva. The mornings are driving me up a wall. Went to see an ent two days ago and he said no signs of disease and healing looks ok. Larry

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HI there... okay did you have radation? Surgery?

Stage three - is NOT a small tumor. Especially if it's been staged at three without nodal involvement. That would make a a LARGE tumor to start. And cancer can seed to the nodes without being detected on a scan.

What treatment have you had?

Assuming you've had radiation then the swallowing issues could be swelling and fibrosis.

hugs...


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Sorry to hear it Lawrence. Cheryl is as always spot on. If you're had rads your throat can undergo changes for several years afterward, as I can attest. Have you had a scope lately? I couldn't eat anything solid for a good six months after my treatment.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Lawrence:
Welcome to the family.

Was your ENT appointment possibly at the time when you experience your symptoms? It's a stretch, but I suppose it possible to have swelling of some sort in the morning and then it goes away later.

Where are you in your treatment schedule? Have you had surgery already?

Do you eat or drink anything different in the morning that you don't consume later in the day that might be causing or contributing to the swelling?

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

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Welcome, and sorry for your difficulties. As with any changes, pain, that does not go away, you need to tell your doctor, who should rule out a cancer recurrence like the ENT did. They can refer you to a SLP, Speech and Language Pathologist, to help you. Usually they do a swallow study, with a modified barium swallow, and see if there are any problems there, offer suggestions, and exercises to do. I had one done 3 weeks ago, and was able to help.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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had radiation and chemo. No surgery . Was eating fine for two months after treatments buy know having trouble. Mostly in the morning upon waking. Does time help with the swelling and fibrosis I am a nervous wreck already

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Tony(great name) not eating anything different but starting to think it is swelling. Had no surgery 35 rad and some chemo. 3 months since last treatment and now having this issue Go figure. Lorenzo

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thanks for the advice Paul Will keep you informed as I go. Larry

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Three months is early. While everyone is different, and so is the amount of radiation, and location of it, and the BOT is integral for swallowing, and was heavily radiated. I couldn't eat anything for at least 7 weeks post treatment, and that was maybe a teaspoon of broth, cream of wheat. It was many more months before I can barely say I ate a meal. Radiation has short term toxicities, that resolve less than three months, and long term toxicities, more than 3 months, some which can take months, years, decades to resolve, happen or not at all. Chemo effects usually start several days after infusion, and resolve after treatment, but some can be long term, depending on the chemo, dosage amount, frequency, and infusion rate, like hearing, neuropathy, kidneys, vision. People often have swelling, dry mouth, difficulty in the morning for many reasons. I sleep on an incline bed, some use humidifiers to help with dryness, and other things to help.


Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Administrator, Director of Patient Support Services
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Ask for a barium swallowing test to see whats going on with your swallowing. You want to ensure you are not getting food and liquids into your lungs by aspirating when you try to eat and drink. Take extra time to eat small bites/sips and try to eat and drink slowly.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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