| |
| | Joined: Oct 2013 Posts: 3 Member | OP  Member
Joined: Oct 2013 Posts: 3 | In 7 days I will have most, if not all of my soft palate removed. My sinuses will be exposed to the oral cavity for at least 3 weeks while the prothesis is being made. Surgeon says Nasal feeding tube might be needed. Well I'm not sure what to expect after surgery... I'm looking for wisdom folks on what to expect, and ways to deal with what's coming. Thank you... for being here. it helps.
Richard, 48...
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Richard, Im very sorry to read what you will be going thru. Im wishing you the very best with your upcoming surgery. If you havent already begun to eat like crazy not is crunch time. Have all your favorites so you dont go into this having cravings. Three weeks with a nasal tube in my opinion is being conservative. It could be longer.
Another pointer is not to be afraid to ask for pain meds. If you are uncomfortable tell them, dont minimize it and try to tough it out. Being in pain has never helped a patient recover faster, it only makes them hurt. If you can have someone with you during waking hours that would be great. You would have someone there to watch out for your best interests and speak up for you, in case you arent able to advocate for yourself.
Best wishes, please keep us posted how you make out.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Hi Richard
I had all my hard palate removed and nasal cavity too. I was told I'd need a month in hospital but with my brilliant surgeon I was home the next day. I had a temporary obturator to fill the gap and packing for the first 6 weeks. I didn't have a feeding tube and ate ok. We all react differently I was very gung-ho ! I'm getting on with it! Be sure you will be ok and adapt quickly...if I can you definitely can! If you want to chat pm me
Big hugs
Jayne x
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
| |
