| Joined: Nov 2013 Posts: 34 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Nov 2013 Posts: 34 | Tina, could you change the name of a tumor to something else. LOL. Tom.
discovered a golf ball in my neck St.Paddy's day 2010. Dx stage 4a left tonsil ca may 2010 at 50 non smoker, moderate beer drinker HPV-16 pos. tosillectomy 9 weeks Cisplatin 35 rads nov.2010 PET NED 2011 2x PET NED 2012 2x PET Ned 3/13 Pet NED SEptember 2013 Pet uh-OH.questionable and anxious follow up pet, yup, its back. mets to sub clavivular and mediasteinum nodes biopsy positive scc. trying to figure out next step my imaginary friends think I am crazy.
| | | | Joined: Nov 2013 Posts: 33 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2013 Posts: 33 | Sorry Don if I am confusing you. I have changed my profile a bit. I had biopsies at two spots in the spring of 2013. Then in late October 2013, I had a larger biopsy on the upper spot.
At this point, the Vancouver Cancer Centre has had the October biopsy for about two weeks. I am unsure as to where the actual sample is.
On Nov 19 in Prince George, I had the CT and MRI (no biopsy). On Nov. 20th I met the oncologist at the PG Cancer Centre. He set up a PET scan in Vancouver for Dec 2,2013.
Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain Al Bx on spot, strip, and vocal cords, lab rep benign Oc 24 Surgeon follow-up, larger Bx req'd Oc 25 Bx bits to Vanc. Cancer lab No 14 MD said more ca investig'n req'd No 19 Prince George CC, MRI & CT No 20 PGCC Oncol says cancer De 2 Vancouver Cancer Centre, PET/CT De 31 VGH partial glossX + ex spot on vocal cords
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Thanks. So you have a solid diagnosis and now you are in the process of establishing your treatment options and they want to do more scans the get more details before finalizing your treatment. That is how it seems to me. Hang in there, the wait is a drag but take comfort that you are getting lots of eyes and brains on you case and will end up with the best treatment options. Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Nov 2013 Posts: 33 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2013 Posts: 33 | Thanks to tina77, PaulB, n74tg, Cheryld, and Tom O'Sullivan for replying. I have to get outside working as winter is advancing.
The Prince George(PG)Cancer Centre was brand new in November of 2012. It was built to serve the northern part of the Province of BC, and Yukon Territory. It has all new equipment. Google "How big is BC" for some comparison graphics. I live midway between PG and the Pacific Coast in a town of about 5000. PG has about 70,000. The Cancer Centre is adjacent to the hospital which is a teaching hospital attached to the University of Northern BC in PG.
The PET/CT scanner, however, is located in Vancouver BC. PG is a 4 1/2 hour drive each way for me. Vancouver then, is about 10 hours drive south of PG. So, my road time to Vancouver is almost 15 hours, or 1 1/2 hours on a droning turboprop Dash8 aircraft. We get used to waiting for things in this part of North America. The BC people further north of me have things even worse, not to mention folks in the Yukon and Alaska.
n74tg, as for options outside the Canadian medical system, I know they exist, if you can pay. Domestically there are huge legal battles whenever someone tries to start a private clinic outside the gov't system. As a Poli-Sci major, I will leave it there. In order to say more, I would have to know much more about how the Cdn system works. A better understanding of the US, and several other nations' systems, would also be helpful for any informed discussion.
I hope this makes my geographical situation more relevent to the timelines I posted. Thanks again everone.
Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain Al Bx on spot, strip, and vocal cords, lab rep benign Oc 24 Surgeon follow-up, larger Bx req'd Oc 25 Bx bits to Vanc. Cancer lab No 14 MD said more ca investig'n req'd No 19 Prince George CC, MRI & CT No 20 PGCC Oncol says cancer De 2 Vancouver Cancer Centre, PET/CT De 31 VGH partial glossX + ex spot on vocal cords
| | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2013 Posts: 559 Likes: 1 | Hello Carp:
Yes, the other thing I remember about working in Canada, was everything was a long, long drive away. Grande Prairie to Revelstoke was like a 12 hour drive.
Ain't life grande.
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0. 11/13 start rads, no chemo 12/13 taste gone, dry mouth, 02/14 hair slowly returning 05/14 taste the same, dry sinuses, irrigation helps. 01/15 food taste about 60% returned, dry sinuses are worse in winter. 12/20 no more sinus problems, taste pretty good
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive been reading this over the past couple days and have not posted yet. I was unsure of your diagnosis so didnt comment. If I am understanding your posts, currently you have not yet diagnosed with OC. After a couple more tests you are expecting to get your diagnosis. Is this correct?
Let me at least say welcome to OCF. If you are diagnosed with OC then Im certain we will be able to assist you. Until that time, live it up and try to stay busy. Waiting is the worst!
Good luck! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | [quote=Tom O'Sullivan]Tina, could you change the name of a tumor to something else. LOL. Tom. [/quote]
Sorry Tom - the name fit "Tom the tumor" - for some reason it had to be a man, and it had no "r" or "s" involved, lol!
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Tina too funnny!!!!
Tom I appreciate the distance.. I'm Canadian... I totally get it. I am however blessed enough to be close to Toronto and Princess Margaret Hospital. If you ever do decide to get treatment in Vanc - be aware that there is likely a hope lodge you can stay at during your treatment - most people spend 5 days a week there and head home on weekends though I think you could just stay the whole time if need be. Don't let distance be a determining factor - your survival is more important. And damn you must be COLD!!!! Brrrr... hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Nov 2013 Posts: 33 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2013 Posts: 33 | Thanks to all who have responded to my introduction. Please do not add anymore to this as I am going to start a thread over on Currently in Treatment.
Carpe Diem
Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain Al Bx on spot, strip, and vocal cords, lab rep benign Oc 24 Surgeon follow-up, larger Bx req'd Oc 25 Bx bits to Vanc. Cancer lab No 14 MD said more ca investig'n req'd No 19 Prince George CC, MRI & CT No 20 PGCC Oncol says cancer De 2 Vancouver Cancer Centre, PET/CT De 31 VGH partial glossX + ex spot on vocal cords
| | | | Joined: Nov 2013 Posts: 33 "OCF Canuck" Contributing Member (25+ posts) | OP "OCF Canuck" Contributing Member (25+ posts) Joined: Nov 2013 Posts: 33 | Greetings to the newbies here. I am sorry you are here, if you indeed have OC, but on the other hand this is probably the best place to get info from people who truly know what they are talking about.
I am bumping this to the top to let folks know my future posts will be on "Currently in Treatment." I hope to be able to contribute by making suggestions about some of the more mundane issues newbies face, such as approaching the board, food, surgery logistics etc. Good luck.
Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain Al Bx on spot, strip, and vocal cords, lab rep benign Oc 24 Surgeon follow-up, larger Bx req'd Oc 25 Bx bits to Vanc. Cancer lab No 14 MD said more ca investig'n req'd No 19 Prince George CC, MRI & CT No 20 PGCC Oncol says cancer De 2 Vancouver Cancer Centre, PET/CT De 31 VGH partial glossX + ex spot on vocal cords
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