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Joined: Oct 2013
Posts: 6
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OP Offline
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Joined: Oct 2013
Posts: 6
Let me try to answer some questions.

Anne-Marie--yes depression does factor in some, and I am on anti-depressives. I don't believe I need to up the dose as this is the only place I have this crying issue. Or at least not today. smile I am on a facebook group for survivors of head and neck cancer and use it to reach out to others and let others reach out to me and yes it does help.

ChristineB--Thank you for "getting" me so few do.

Bart--Thank you for your message. I have read it but I am tired today and I couldn't absorb it. My chemo brain is worse when I am tired. I promise I will go back to it.

n74tg--This crying thing only really happens here in this forum. Every time I try to read comments and get involved here. As far as is there anything else going on; not to any great extent. I am back to work, back to keeping my grandson a couple of days a week, going to football/basketball games etc. Yes, I have to do less than I did before and sometimes I skip stuff because I need to rest. But I am working on getting used to my new normal.

Bart--Thank you for your message. I have read it but I am tired today and I couldn't absorb it. My chemo brain is worse when I am tired. I promise I will go back to it.

As a Crisis Intervention Chaplain I see, help, come along side of people most every day that are going though some really difficult stuff. Maybe I know here is where I can have people do that for me.

Thank you all,


Blessings,
Lori

SCC stage 4 dx 04/12
Partial glossectomy (1/3) 04/12
Radical neck dissection 05/12
6 rounds Cisplatin 35 rad started 06/12
2nd clear PET 03/13
Joined: Oct 2013
Posts: 559
Likes: 1
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2013
Posts: 559
Likes: 1
You got it Lori, be there for you, that's what we do best.

As for getting used to the new normal, yes the diagnosis has kind of affected my routine too, mostly in the increased fatigue area. But, I don't feel guilty one bit about taking a nap anytime I want or letting the answering machine take a message while I nap.

take care

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

Joined: Oct 2013
Posts: 6
Member
OP Offline
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Joined: Oct 2013
Posts: 6
I have actually started reading some of the posts, and even commented on one. Hey I am making improvements.


Blessings,
Lori

SCC stage 4 dx 04/12
Partial glossectomy (1/3) 04/12
Radical neck dissection 05/12
6 rounds Cisplatin 35 rad started 06/12
2nd clear PET 03/13
Joined: Aug 2011
Posts: 269
ngk Offline
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Aug 2011
Posts: 269
Hi lori -- yes you are smile


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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