| | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | I'm at a loss here. I had two ENT's. first is the one I've been going to since 2011, (first dx) through my HMO and second the ENT surgeon who performed my TORS. now that treatment is over, I'm basically going back to my HMO ENT. However the surgeon said to get a PET in 3 months, my ENT said he doesn't want a false positive and to wait 6 months, and i need an endoscopy every month. When I look at people's signature lines it looks like most people get their first scan in 3 months. And an endoscopy EVERY month??? Is that the norm? In 2011 he was giving them to me very 2 months.?? He said he will go with what I want. I just want the norm....
....thanks...
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | There is no norm even to have any scan post treatment or routine scanning after that, and NCCN guidelines says it's only for certain T3, T4 disease only, which should be between 3-6 months post treatment, unless there is suspicion of cancer. It's basically up to the doctor, hospital. The professional otolaryngology association, NCCN, does have recommendations for follow-up exams every 1-3 months the first year, etc. which involves an exam, probably the flex scope at that time. I have not seen any requirement for an endoscope, under anesthesea every month, unless you mean the laryngoscope/flex scope done in the office.
All my doctors do 3 months post PET/CT scan or wait a month or two for more healing, and then a scan 6 months after that, and seems most follow this, but not all do.
Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Hi Paul, oh yes I do mean the flex scope. Thanks for the info, that helps. 
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
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