#17257 05-04-2005 02:35 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Donna, My IMRT simulation was about 45 minutes but the actual treatment lasts 20 minutes. When they do xrays at the beginning and end of the week, it is half an hour. They also usually count off for me over the intercom how many positions the machine goes through. There are nine sets of positions, it's hard for me to keep track of on my own but when they stay "starting number 7" I know I'm in the last part of the treatment and that helps me. Perhaps you can get them to do something like that for you if you think it would help.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#17258 05-04-2005 11:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Treatment times will vary depending on the fractional dose prescribed. I have heard of treastment times as short as 10-15 minutes. Mine was more like 35 minutes and longer when they did the weekly x-ray shots. I made my own CD of thumpin' gospel and Christian music and I knew exactly where I was in the treatment based on what song was playing. My treatment protocol was only 8 positions. You will also know where you're at timewise by the gantry position.
Be sure to check the computer monitor that your name is on it. There have been a few instances where people got the wrong treatment program. One gal here got radiated for prostate cancer once when the patient before her didn't show up. In many institutions the rad machines are run 12-14 hours a day.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#17259 05-07-2005 04:45 PM | Joined: May 2005 Posts: 3 Member | | Member
Joined: May 2005 Posts: 3 | Donna,
My thoughts and prayers are with you. Stay strong!!
Kate
Kate Callinan
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#17260 05-07-2005 04:45 PM | Joined: May 2005 Posts: 3 Member | | Member
Joined: May 2005 Posts: 3 | Donna,
My thoughts and prayers are with you. Stay strong!!
Kate
Kate Callinan
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#17261 05-09-2005 02:51 PM | Joined: Mar 2005 Posts: 14 Member | | Member
Joined: Mar 2005 Posts: 14 | Donna Our thoughts and prayers are with you. Keep the faith and you will do well. It is a long journey and you may some bumps in the road but, please do not give up. We will be praying for you. All our best. | | |
#17262 05-10-2005 09:30 AM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | We will pray for you, be strong
Sammie & Richard
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#17263 05-10-2005 02:35 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Donna, I've been away from the board for about a month; so distressed to hear of your situation, but know that your positive outlook will help you beat BOTH cancers. Special prayers are being offered for you and your family. Stay brave and strong - and we'll all be here for you.
Love
Nicki and Tom
(Tom is sending you one of his trademark HUGS - - you have humbled him and made him feel like he's got nothing on his plate)
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#17264 05-14-2005 03:20 AM | Joined: Mar 2005 Posts: 15 Member | | OP Member
Joined: Mar 2005 Posts: 15 | Thanks for all the encourgement. I had my 1st chemo the 3rd and started rad the 4th they had done another simulation on Monday the 2nd. I was so lucky with my chemo. Taking cisplatin, they gave me Aloxi for nausea injected during hydration drip and decradon then the cisplatin and then other half 1 hr of hydration. Had NO nausea at all for 3 days woke up on 4th day a little queasy feeling and took the compazine tabs they had given worked great. Really happy with 1 down 2 to go with it. Now for the IMRT. makes 21 stops with 4 boosts. Haven't had any problems doing it at all execpt back problems that I've had for 4 years between the ride treatment and ride home has it all messed up time from leaving till home runs about 4 hours aday. They have always been very fast about getting me in and couldn't ask for nicer people just love all of them and couldn't say enough about them. They all have been so kind and caring. So far the only things with 8 treatments behing me I've noticed are Pepsi is gone (whinnnny) I was a Pepsiholic. Coleslaw burns like you put hot sauce on it and chocolate doesn't taste right (how could anyone do that to a woman LOL). Have a slight sore mouth and throat but haven't had to use sekul solution they gave. They gave me Radia-Guard lotion to use right from start put it on right after treatment and at night on Sat and Sun morning and night. Swelling behind ear and down neck are going down right now but that side feels tight and pulls (maybe had half a jowl lift)That's about it for now doing fine execpt sleeping ALOT had blood work yesterday and it came back good. Hugs to everyone and all your help and just knowing you are here.
Donna
Proud Navy Mom
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#17265 05-14-2005 07:11 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hey Donna
So pleased you are doing well, I know the road is hard but you are getting there. God must be a man, I only had surgery and I can't eat chocolate, horrible nasty stuff, if God were a woman she would just mess up the taste of beer.
Sleep if you have to, your body will be the boss at this time, so listen to it.
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#17266 05-14-2005 12:40 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Donna,
So glad to hear you are tolarating the treatment so far. Hope it continues through all your treatment. Some sail right through while others suffer the bad side effects of both rad and chemo. I also was lucky and didn't experience the bad side effects i could have. Your taste will slowly return. It takes awhile before that happens. Keep up that positive attitude, It will carry you a long way!!!
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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