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| | Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2012 Posts: 58 | Hi all.  So - I still have no feeling on the left side of my tongue where the cancer was removed but I have always had feeling on the tip of my tongue. Over the last couple weeks a razor blade feeling, like that of during radiation, has started only on the tip. No matter how or where I move it, whatever I eat or drink I can feel it. I don't know if it's nerves or what? But it's starting to become frustrating. Has anyone else experienced this around this timeframe post radiation?
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV-
T3 N1 M0 SCC Dx 11-10-11
11-23-11 Left Hemiglossectomy
11-30-11 Modified Radical Neck Dissection
01-25-12 Removed another spot on BOT, skin graft (left thigh)
38 RADS Tx Finished April 13, 2012
Fall 2014 - HBOT due to wisdom teeth extraction post radiation
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I have not experienced razor type pain, but I have experienced tingling on my tongue. My ENT said it was the nerves trying to regenerate and mature.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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