| Joined: Sep 2013 Posts: 4 Member | OP Member Joined: Sep 2013 Posts: 4 | I am interested in having the OralCDx brush test done on a spot, on the gum. I am nearly 2 years out from my last treatment and I was curious if anyone has ever had this done. I see my ENT next week, but I am guessing he will just say "let's just watch it" and frankly I am either impatient or I am just tired of always "watching it" I suppose all of you survivors will get what I mean. I have no clue as to the cost either. Thanks,
Timothy1963
Stage III HPV16+ Base of Tongue: DX Oct 2011 - TX were Erbitux and Radiation Only. Last TX was Jan 2012 To Date: NED
| | | | Joined: Sep 2013 Posts: 4 Member | OP Member Joined: Sep 2013 Posts: 4 | ..I might add the spot has been there for only 3 weeks and it white in color, small (smaller than a pencil eraser) is on the gum behind the bottom front teeth and does not hurt or seem / feel irritated. Can't think of anything I might have done to injure or cause it.
Timothy1963
Stage III HPV16+ Base of Tongue: DX Oct 2011 - TX were Erbitux and Radiation Only. Last TX was Jan 2012 To Date: NED
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | I never had it done. I think it's used mostly by dentists. There was a discussion here about its accuracy, and false positives. I went to four different ENT's through the years, three oncologists, and none ever used the brush biopsy. It could be anything, especially in the mouth, where probably hundreds of conditions can cause it, but it is good you're being proactive, and should show your doctor, especially if the condition is still there more than three weeks. I don't know if the doctor would want to watch and wait if it can't be identified, and cancer ruled out, and your prior history, not saying it is. I had a white spot back of gum, wisdom tooth that was getting infected. I had to have the tooth extracted, and do 30 HBO treatments.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | As far as I have seen on the forum, it is not as accurate as other methods. The most effective is to have a regular biopsy.
Any sore that has been in noticed in a persons mouth for 2 or 3 weeks needs to be checked by a professional. After having a history of OC, your doc should NOT play the watch and wait game. They should do a biopsy. A regular biopsy can be done right on the spot. There are a few ways to do a regular biopsy, asleep, being numbed with novocaine or lidocaine or just to do it without any numbing agents. Ive had biopsies done all 3 ways and the third one without anything is my preferred choice. It will hurt for a minute and then its not that bad.
Remember after rads, patients heal at a slower pace.
Get it checked so you can know for certain what it is. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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