| | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | Hello Friends!
I hardly post here, but I do come back and connect with all you occasionally. It feels good to remember there are others who understand what I am going through. Getting ready to return to work from occurrence #6, surgery, rad and chemo. They found it in one lymph node near my thyroid. After recovery from surgery i had 25x of rad and 7x chemo. Well I ever be rid of this? I am starting to feel like a permanent patient, always waiting for the next occurrence to pop up. This time I spent 7 weeks in NYC getting treated at Beth Israel Hospital. I was able to stay at Hope Lodge (run by the American Cancer Society), and I gotta tell you the staff and other residents were awesome!
I don't know how to feel anymore honestly, I am happy to have made it through again, but how do I find real joy again when all I do is survive treatments, or wait for it to pop up again?
thanks for listening!
Gina
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Gina, I am so terribly sorry to read your post. Recurrences are the worst imaginable thing to go thru. Its what every single member of this forum is afraid of the most.
Ive been there and understand how you feel. Hang in there and remember we are here for you whenever you want us to be.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Gina, I'm sorry to hear of your recurrences. I definitely know how you feel. I'm very similar with 6 myself, and just found out today another. I also go to Beth Israel, and stayed at Hope Lodge during my last treatment in 2012. I don't have much advise, other than doing what you have to do, take one day at a time, and try to enjoy yourself. Good luck with everything.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | You and pail are made for each other. Hugs to you you are a complete trooper.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | Hi Christine!
Thanks for the reply and the support. I always come back here to touch base with those that understand. I always feel better.
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
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