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#170316 09-02-2013 10:34 AM
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
The ND hurts less than I thought, as far as the incision goes, but the swelling and limited motion is miserable. Can hardly open my mouth to insert food. Plus the pressure is triggering migraines, which cause anxiety attacks and vomiting when I cannot keep them under control. They did release me from the hospital a little early, bless them, after panic kept me throwing up one whole night. The nurses I had were fantastic.

Just want to cry with misery and frustration. And head pain.

My voice has improved. I no longer sound like a Dalek. But I could've landed a part voice-acting one last week. smile

And we were robbed of all our good lawn equipment sometime during all the chaos. They only took the good stuff my husband had specially saved for, and the gas can. One straw too many. He had finally gotten the tools he needed. frown

Can I weep for a day withou causing too much damage?

Kristen


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Joined: Jun 2013
Posts: 262
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Gold Member (200+ posts)

Joined: Jun 2013
Posts: 262
Hey Kristen, yes you can weep ... It's holding it back that does the real damage smile

I'm sorry that you're in such misery. Managing migraines and anxiety attacks along with an ND would put me beside myself. And how maddening to suffer a robbery, to boot.

Is it pressure from the surgical wound, or pressure from everything that's exacerbating the migraines?

Hang in there, you are just days out of surgery and things really do get better --

<<<HUGS>>>

Mama


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
OP Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
I think it is pressure from the swelling, from panic, and from the storm front that ripped through last night. It should get better, right?


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery

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