| Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | The ND hurts less than I thought, as far as the incision goes, but the swelling and limited motion is miserable. Can hardly open my mouth to insert food. Plus the pressure is triggering migraines, which cause anxiety attacks and vomiting when I cannot keep them under control. They did release me from the hospital a little early, bless them, after panic kept me throwing up one whole night. The nurses I had were fantastic. Just want to cry with misery and frustration. And head pain. My voice has improved. I no longer sound like a Dalek. But I could've landed a part voice-acting one last week. And we were robbed of all our good lawn equipment sometime during all the chaos. They only took the good stuff my husband had specially saved for, and the gas can. One straw too many. He had finally gotten the tools he needed. Can I weep for a day withou causing too much damage? Kristen
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jun 2013 Posts: 262 | Hey Kristen, yes you can weep ... It's holding it back that does the real damage I'm sorry that you're in such misery. Managing migraines and anxiety attacks along with an ND would put me beside myself. And how maddening to suffer a robbery, to boot. Is it pressure from the surgical wound, or pressure from everything that's exacerbating the migraines? Hang in there, you are just days out of surgery and things really do get better -- <<<HUGS>>> Mama
53 T3N2aM0 HPV+ 5/26/13 discovered painless superball-sized lymph node in neck 6/26/13 DX SCC R palatine tonsil 7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes 9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses 10/16/13 Treatment ends Dec 13 Ulcer appears at surgery site Jan 17 Biopsy -- no cancer! Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | I think it is pressure from the swelling, from panic, and from the storm front that ripped through last night. It should get better, right?
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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