| | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | OP  "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | hi everyone,isnt life wonderful,talk about a wakeup call.
dont see inside of a hospital for 50 years now I could rent a bed in cancer care
Last edited by Ranger47; 08-24-2013 04:30 AM.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Hi Ranger - sorry to read this. Please tell us more, we're here to help.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Hey Ranger, welcome, sorry life has taken this turn and glad you found us.
Many here have been in the same boat, bursting with good health and then brought up short by cancer (me too). I'm taking heart from the folks here who have found their way back to wonderful life, no matter what cancer threw at them.
Are you in treatment?
<<<HUGS>>>
Mama
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | hey thanks for the support | | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | thanks I start my 35 radiation treaments and chemo step 9, when your a new to this diease you dont realize what a battle your in for huh dave | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ranger,
Please tell us more about your cancer. See my Signature Line and others as examples of what we need to be most helpful.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | hi Davidcpa, looks like we are twins , same age same cancer, i start treament sept9, need chemo 3 times a week and radiation 5 times a week for 7 weeks unless the chemo damges my hearing then i go to really expensive chemo 40,000.00 for 8 doses but may damage my kidneys what joy! I used to ride my bike too was riding about 100 miles aweek too couple years ago I rode 100 miles in one day, im 58 dont smoke or drink (quit 13 yrs ago)havnt been in a hospital for about 50 years now thats all i will do and the more i read about this the harder it is to be super positive , its like a dark cloud that just hangs over me . i tell my co-workers dont worry about me im going to beat this , but inside lots of doubts
Last edited by Ranger47; 08-26-2013 10:55 AM.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | If you PM me and give me your telephone number I'll call you.
For us to be twins then you must be GOOD lookin! lol
Your chemo is most likely Cisplatin and it did cause me permanent hearing loss so if you "hear" ANYTHING weird while on the chemo IMMEDIATELY tell your docs. They describe it as "ringing" but to me it was more like a very faint hiss and it wasn't constant.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey Roger welcome from another Canadian...  You'll get through it. Read up on what to expect - the drs are never forthright - they're afraid you'll head for the hills  Plan for the worst - hope for the best... and eat eat eat... hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Aug 2013 Posts: 9 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Aug 2013 Posts: 9 | hi Cheryld, thanks for your kind words, man I use to love food more than life now I force myself to eat, lucky for me I have a garden and I made huge pot of veg soup because before i new i had neck cancer I changed my diet to fruit veg and fish but little red meat about 3 months ago and lost 30 pounds little did i know the cancer was helping me lose weight , unfortually im lost lot of muscle too so I am kinda of concerned i have little appitite now I can see it will be even less oh well this shall pass
Last edited by Ranger47; 08-26-2013 10:57 AM.
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