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Joined: Jun 2013
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bjlral Offline OP
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Joined: Jun 2013
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Richard has mentioned that the right side of his neck (tumor-side, lymph node area) seems to be getting bigger. His mask for radiation treatment is snugger than it was in the beginning.

Is this cause for concern or not? Possible collateral damage of the radiation causing normal tissues/nodes to swell? Is this something you folks have typically experienced?

When he asked the doctor, they told him that tumor shrinkage would not happen right away, since the radiation continues to work after treatment is over.

Thank you for your "ear" and your commonsense, experiential wisdom!

Barbara (caregiver of Richard)


65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
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Hi Barbara,

If Richard started chemo June 17 it has been a few weeks already. In my case, I had 3 cycles at 3 week interval before starting chemo-rads. My response was amazing. Within the first week of the first chemo treatment I could feel the node tumor shrinking. The second cycle it was nearly gone and by the third cycle was gone and the final scan said "near or complete response" which means the chemo was very effective.

So, by the time I was fitted with the mask, there were no such issues. don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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I am in my final days of same Tx. I only noticed a significant shrinking of the tumor mid 4th week and now it has almost disappeared. In week 2 I had them cut away part of my mask over my throat on the tumor side because the mask tightened. In talking with several "on the floor" staff it is not unusual to swell in the neck throat area. Patience is the key and understanding that no 2 patients are alike.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
Joined: Sep 2006
Posts: 8,311
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Obviously you need to bring this to his docs attention. I had no such issues.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Tell the doctor. In additions to what Don Foo said, it can also be weight gain, and swelling if the face aka "moon face" from the decadron, the corticosteroid given with some chemos.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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