Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#167023 06-24-2013 09:16 AM
Joined: May 2013
Posts: 44
"OCF across the pond"
Contributing Member (25+ posts)
OP Offline
"OCF across the pond"
Contributing Member (25+ posts)

Joined: May 2013
Posts: 44
Well I've just had my appointment.

I was seen by two oral surgeons. The first said he couldn't feel anything so went and got his consultant, who had a feel too. He said he COULD feel a lump but said he wasn't worried and told me he thought it was a tonsil. Apparently they increase and decrease in size now and again. He said that if it continues to bother me, then to make another appointment and they'll sort it out for me.

Hopefully he is right and that's all it is, I'll try to forget about my mouth for a week or so (that means no touching Aimee), and see if it decreases in size. I think has a bit, it's weird. It kinda gets big and a little firm and then I get the strange sensation in my mouth like something. Has burst then a slightly funny taste and it feels a little smaller, think its done this twice now.


No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
Jade5792 #167027 06-24-2013 11:36 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Yeah... hopefully it remains - nothing - but do as he says - follow up if you are still bothered in a few weeks. take care


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #167028 06-24-2013 11:43 AM
Joined: Jan 2013
Posts: 17
"OCF across the pond"
Member
Offline
"OCF across the pond"
Member

Joined: Jan 2013
Posts: 17
What hospital did you attend? I went to the Luton and Dunstable and would recommend the max facs surgeon there.


SCC type 1 tumor in left cheek aged 45
T2N1M0 - surgery 14/2/13 to remove tumor, skin graft from wrist, neck dissection. No rads/chemo.
Jade5792 #167030 06-24-2013 01:21 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
In your Signature Line you say HPV-. I assume you are talking about the cervix not the oral cavity because they are totally independent. BTW swollen tonsils can be a sign of oral cancer and only a biopsy can tell for sure. I think you need a referral higher up the food chain.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Jade5792 #167036 06-24-2013 03:13 PM
Joined: May 2013
Posts: 44
"OCF across the pond"
Contributing Member (25+ posts)
OP Offline
"OCF across the pond"
Contributing Member (25+ posts)

Joined: May 2013
Posts: 44
I went to Broomfield hospital. Yes I'm aware swollen tonsils can be a sign of cancer but I have been prodding it a lot since I found it, and since I've not touched it much the past few days it seems to be going down a bit. But I'll still get it checked out if it persists of course. And no I mean both oral and cervical HPV, at least I wouldn't think I had it as I have no idea how I would have gotten it, seeing as my verginity is intact in every way.

I think a week or two of leaving my mouth alone and tryi g to distract myself will help my mind rest a bit and maybe some of my symptoms will go. I still have the appointment from the dentist to come through yet, so if it is still a problem then, I'll use that to get proper tests done.


No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
Jade5792 #167050 06-25-2013 05:16 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
It would be rare for you to test + for HPV with your "virginity is intact in every way" but not impossible. Certainly depends on that "every way" definition and I mean no disrespect in this post. You have everything going against a Dx of oral cancer but do stay on top of it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Jade5792 #167059 06-25-2013 09:21 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Definitely it could be something else... an infection...? Hopefully it's nothing but diligence is important. We had a young mom here with a tongue cancer, then a recurrence in her tonsil, non HPV. For those of us with no known cause - I imagine it can occur anywhere, and despite the fact that MOST tonsil cancers are HPV related, that's not 100 %.. hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Jade5792 #167067 06-25-2013 12:15 PM
Joined: Mar 2013
Posts: 421
Likes: 1
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Mar 2013
Posts: 421
Likes: 1
Six doctors and two oral surgeons feel there's nothing to really worry yourself about. I'd say that's a pretty positive prognosis!

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Jade5792 #167084 06-25-2013 02:58 PM
Joined: May 2013
Posts: 44
"OCF across the pond"
Contributing Member (25+ posts)
OP Offline
"OCF across the pond"
Contributing Member (25+ posts)

Joined: May 2013
Posts: 44
The fact that I have no risk factors that I'm aware of and the 9 medical professionals (including dentist) say they don't think it's cancer is reassuring. But the fact that its been around for a while now (almost 3 months) and they can't tell me what it is exactly bothers me. That sling with the fact that I could have it with no risk factors of course.

I think I'm going to TRY and forget about it for a couple of weeks and if its still bothering me then I'll ring the hospital as advised by the oral surgeon and see what they will do about it.


No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
Jade5792 #167106 06-26-2013 02:02 AM
Joined: Apr 2012
Posts: 111
"OCF across the pond"
Senior Member (100+ posts)
Offline
"OCF across the pond"
Senior Member (100+ posts)

Joined: Apr 2012
Posts: 111
Hi Jade. I've been on holiday since my last post, and you have certainly been going through the mill for the last 2 weeks. I am almost hoping that you don't see this post for quite a while and that you are taking your own advice to 'TRY and forget about it for a couple of weeks'. This forum can be quite addictive and I think you should try to find some other interest to keep you occupied. But do give us an update in the future. It sounds like you now have the gastric reflux under control and if you can stop proding the suspicious bits, then there is a good chance that it will settle down. Best wishes. Sally



Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
Page 1 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,933
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5