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| Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2011 Posts: 126 | Hi Meli, If it makes you feel any better regarding the chemo, I found the chemo was the easiest part of the treatment. When the doctors originally told me I would need chemo, I remember bursting into tears and thinking it was the worst news ever. However, they gave me weekly smaller doses of cisplatin, and i found the side effects were pretty well managed - nothing compared to the radiation. I didn't lose my hair and only had a couple bouts with the nausea (they give you very good medicine to keep the nausea at bay). Hopefully that provides you with just a bit of comfort - I was also diagnosed young and have bounced back pretty well 1 and a half years out from treatment and back to living my life!
Emily - 24 years old at diagnosis HPV-, no risk factors T2N2b Squamous Cell Carcinoma Left oral tongue, poorly differentiated Hemiglossectamy, reconstruction, partial neck dissection 30 Radiation treatments, weekly chemo (cisplatin) 1/13/12 last day of treatment Diagnosed October 2011
| | | | Joined: May 2013 Posts: 63 "OCF Kiwi Down Under" Supporting Member (50+ posts) | OP "OCF Kiwi Down Under" Supporting Member (50+ posts) Joined: May 2013 Posts: 63 | Thanks Jay. I'm in Auckland and am being looked after at the Auckland Hospital by the Head & Neck cancer team. Just read your other post... I'm really glad that your wife is doing great.
David thanks for your kind words. It's great to have everyone here to ask questions of.
Emily that's great to hear. I'm also having 30 rad treatments but am only having 3 rounds of chemo (each 3 weeks apart) but I haven't asked what the dose is?
39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+ 28 May 13 - Pharangoscopy & tongue biopsy 29 May 13 - BOT Surgery & right ND (lvls 2-5) 31 May 13 - Hemorrhage, emergency trach, critical care BOT clr mgns, 9/67 nodes & extracapsular extension Finished chemo (cisplatin) & 30 rads
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