| | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP  "OCF across the pond" Contributing Member (25+ posts)
Joined: May 2013 Posts: 44 | I think it's an oral surgeon at the hospital. As it takes a while for things like that to go through as they are not worried, I doubt it would be anytime soon anyway. Certainly not before I should be able to get myself in to see an ENT and have the tongue biopsied. Assuming my doctor will give me a referal this time, after I've been to my dentist on Tuesday.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | If they remove it request a biopsy on the tissue
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: May 2013 Posts: 44 | I will do, just all depends on who I get to see first. I really don't want to have to wait for much longer as I'm sure my tongue's worse now, the whole right side feels bigger then the left and very very slighty firmer, but again you can't physically see any differences. I know it's changed as over the past few days I've found myself biting my tongue a lot easier than I did in the past. As though it's slightly in the way sometimes.
Last edited by Jade5792; 06-09-2013 02:55 AM.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: May 2013 Posts: 44 | Well that was much sooner than expected.
I got a letter through today from the hospital with an appoinment to see the oral surgeon who is going to have a look and possibly cut a small lump/spot thing off my tongue depending on his evaluation, hopefully I he'll biopsy it and then hopefully I'll have a better understanding of what's going on in my mouth. It's still a little later than I would have liked, but a lot sooner than I expected it to be. 24th June.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | great news. just keep moving forward, one step at at time!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: May 2013 Posts: 44 | I'm just glad that its a start towards finding out what is going on with my tongue, and seeing whether or not my fears will be confirmed. Hopefully nothing will change leading up to the appointment, it's not too far off thankfully.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | | Joined: May 2013 Posts: 69 "OCF across the pond" Supporting Member (50+ posts) | | "OCF across the pond" Supporting Member (50+ posts)
Joined: May 2013 Posts: 69 | | | | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | | OP "OCF across the pond" Contributing Member (25+ posts)
Joined: May 2013 Posts: 44 | Thank you.
I know getting it tested is the best thing that I can do right now, but at the same time I'm hesitant to do so as I'm so scared I'll get the results back I do not want. It's like some part of my mind is telling me to ignore it and it'll go away and if I don't get it tested and no one tells me it's cancer then but obviously can't be. But I know that is an incredibly stupid mindset, as it very well can be cancer and not getting the proper tests and essentialy treatment if it is cancer would quite literally be a death sentence.
Last edited by Jade5792; 06-10-2013 02:16 PM.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Or as a television psychologist on this side of the pond would say, "how's that working for you, Jade?"
By delaying you end scouring the web, asking on forums...the mind takes over and you end up with nothing but stress.
I think we all have done that once or twice in this journey. I am sure hoping it is nothing or at least not cancer!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | It's very true and very scary. But you are facing it and doing what you can which is best. Think of it this way. If it is bad news then you are better able to prepare for it early in the course of the disease rather than having to face it when it is more advanced and more terrifying.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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