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I mention a blood test for possible indication of infection, anemia, neutropenia, which can cause mouth ulcers. Actually, there is a Squamish Cell Carcinoma Antigen test, but should not be used as sole diagnosis, but for further investigation. CEA, mainly for colon cancer abd rectal, and is used in others cancers too, including HNC to monitor recurrence, and after surgery of tumor removal, but may be that common. I'm having CEA done with my next blood test next week.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: May 2013
Posts: 44
"OCF across the pond"
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"OCF across the pond"
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Quick question as I'm trying not to Google anymore (I wonder how long that will last).

What else apart from leaukoplakia, could be why the side of my tongue is a bit white?. It comes off a bit if I wipe it with my finger but not completely and it's on the other side a little now as well, though it's not as much and harder to see.


No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
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Could be Thrush but it would be painful.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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As David mentioned, could be thrush, which is a fungal infection, basically a yeast infection out of control, if it can be scraped off. They can do an oral visual to diagnose of do a culture from the scraping. Thrush feeds on sugar, alcohol, and yeast, so avoiding those help. The drug of choice is fluconozole, cltromizole. Some say taking pro biopics, eating yogurt helps, , but some are against adding more bacteria to the body. Show your doctor.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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"OCF Canuck"
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Thrush could very well be a culprit an infection, of some sort - or a mechanical injury when we skin our knee we scab, on an injured tongue its a milky white patch that eventually goes away when the area is healed. Also lichen planus.

Speaking of which someone mentioned leaving lichen planus too long to be treated and this leading to cancer. I have to say don't beat yourself up. Seriously. As far as I know they do not know what causes lichen planus, therefore treatment is not really a happening thing. I mean unless there have been recent discoveries since I was diagnosed - I was originally told lichen planus, then the biopsy confirmed cancer, but I did a bit of research into lichen planus, and from what I read treating it is a crap shoot. And not all lichen planus turns into cancer.

Hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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They do not know what causes this. I think it's very low, according to some, in the 8% range, to manifest to cancer, and taking five years.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: May 2013
Posts: 44
"OCF across the pond"
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"OCF across the pond"
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Joined: May 2013
Posts: 44
Hello everyone, thanks for the replies.

I will ask my doctor to refer me to an ENT tomorrow morning when I see her, I'll update after my appoinment to tell you how it all goes, hopefully she shouldn't object.

Today my main problem has been with my throat, it's very strange sensation I get. It feels kind of inflamed and the sensation of something being in my throat is worse, like it's gotten bigger; and it's all in the lower part of my throat, where a doctor cannot see with just their eyes and a light (around where the adams apple would be I guess), I have a spray the doctor last week suggested I use (Difflam), and it helps a little but not much, it kinda stings when I spray it down my throat.

My tongue is also very strange and it's done this once before, I'm not sure whether it is doing this it not; or if it's just my imagination. whilst the swelling has never been hard as such and I've always been able to push it in like I can on the other side, it's been fairly firm. Today though it feels softer than it has in the past few weeks, I don't know why or even if it is softer or if its just my mind playing tricks on me (probably). I have also got third sensation of something being sticon on my tongue, but I'm pretty sure it's the tastebuds right on the edge of my tongue rubbing slightly, where the swelling is; it has done this before in both sides of my mouth though.

I have had a white coating on the top of my tongue for years (since I was about 12), but it comes off when I brush it for the most part. I did see a dermatologist about it and he said he thinks it's geographic tongue.

Anyway, I really do need to stop with the Googling, as I've been told as it really really doesn't help at all.


No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
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"OCF Canuck"
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No... googling is bad... ;o) good luck tomorrow. Some people have high calcium levels and this can cause a white coating on the tongue. hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2013
Posts: 44
"OCF across the pond"
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Thank you, I'll probably need it.

I'll admit I'm still scared from what the first doctor I saw at the hospital yesterday said (I did mention that here didn't I?, I'll have a look back at my posts and see). I think it was the way he put his hand on my shoulder and said in a very serious tone that I should be worried about it and should get to and oral surgeon and have a biopsy. Something I already know, but being told that by a medical professional is very nerving; even if he did change his mind after the other guy came in, had a look and said he thought it was nothing.

Another thing, do allergies come up in a full blood count, or do I need some other type of tests for that?. If so I might ask for allergy tests too as I have never been tested for any allergies so always so no when asked if I have any, when I very well could; and that could be part of my problem.

I'm not sure what my phone is up to but it keeps messing with my posts, changing words.

Last edited by Jade5792; 06-06-2013 08:08 AM.
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Chillax Jade....the doctors will give you some concrete info very soon. Don't jump to another health issue before you ride this one out.

Do you brush your tongue? Many people don't and many people should. We use various types of scrapers and brushes this side of the pond. It is common to have white residue on your tongue and it could be worse with salty or acidic foods.

There are a million possibilities of what you are dealing with and only maybe one for sure. Work the doctors to find the one thing to worry about. Fear and stress will throw the body and immune system into confusion and bad things can come from that.

Rest up and push forward for the biopsy and see where you are then.

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