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#165114 05-17-2013 11:51 AM
Joined: Jun 2011
Posts: 46
"OCF across the pond"
Contributing Member (25+ posts)
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"OCF across the pond"
Contributing Member (25+ posts)

Joined: Jun 2011
Posts: 46
After my latest neck dissection in late November, and my radiotherapy which finished at the end of February, I've now developed another lump on my collar bone where it joins my sternum.
The biopsy revealed that it contained cancer cells and I had my MRI scan earlier this week. I should get the results after the MDT meeting next week but I know it's in a sensitive position.
This lump is about half the size of a golf ball and quite firm, unlike my other lumps which were all a little softer. The best I think I can hope for is that it's subcutaneous and they can cut it out.
Would appreciate anyone with experience of surgery in this area and the complications if surgery is deep seated.


50 yrs.Non smok.Mod drink.
Tongue canc SCC T2N0M0.
Surg. Jul '11 1/3 rd of tongue rem. & sel. neck diss.PEG fitted.
Aug '11 6 wks chemo/radio.3 more canc. nodes rem.
Feb '12 18 wks chemo.
Nov. '12 Mod rad neck diss on right, & pec flap rep. rem. of tumour under chin. More rad to follow in 2013.
**update** Passed away September 26, 2013
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Sounds like level IV, V or even VI. I assume it's on the right? Do you know it's a metasteses. Level V, VI is unusual, but it happens, and there can be skip metastases or only area left for metastases to go after the MRND, and move downward in the chain. Other type cancers can go up to this area also. I had three neck dissection in the area but the last two wound up not being a lymph node. It was free or roaming cancer, which is not good. Fortunately, surgery was always the easiest part of treatment for me, but with prior surgery, treatment, it is more difficult. Radiation dosage may be limited to the toxicity level of the brachial plexus, nerve, and other structures. Several treatment cancers only wanted to do 50 Gy for the recurrence, but I went with high dose IORT, with another doctor, which included another RND, and radiation similar to brachytherapy, at 15Gy directly on the tumor during surgery, which protects vital structures, and additional chemo and radiation at 50Gy 6 weeks later. He said just doing 50Gy, Chemo would not work, and cancer would likely return. You may want to get other opinions also. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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