| | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 | Oh, and I forgot to add the doc today said they are moving away from using the silvadene on any kind of burns now and days. Shows how things change, when I worked as a nurse 10 years ago that was our go to for burns, and the first thing I thought of when I started turning red. Now she tells me she doesn't use it anymore.
P.S. sorry about the little bit of anger and frustration that showed in the above post, I think I am getting tired.
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
| | | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | I was told to not apply anything to my neck within 4(or 6) hours prior to my radiation time. They mentioned creams and some lotions could interfere with the radiation if i remember correctly. That could be the reason the techs were unhappy. Im not sure which doc recommended the new options but I'd make sure your radiation oncologist (vs a medical oncologist) is on board with it.
Last edited by AndrewL; 05-14-2013 04:26 PM.
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 | Agreed Andrew, not supposed to apply anything 4 hours before radiation but I don't think water would hurt, do you?. The new doc was the other radiation oncologist (there are 3 where I go)  OK, now I am worried about the water on my neck before treatment, I will have to ask tomorrow, I didn't even think of it that way.
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | All I know is Kevin's neck was disgustingly raw and it (the Silvadene) worked great. He doesn't have any scars and the skin is very smooth! No hair of course!!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | The only reason I could see water hurting would be if it prevents or slows the lotion/creme from being absorbed into the skin.
Otherwise, I wouldn't see any issue but I'm no RO. Definitely something to check out with your doctor.
On the original question, I used aquaphor 2x per day and I didn't have terrible issues with my neck. I also made sure to stop using abrasive/drying soaps and face washes. I purchased cetaphil bar soap and used that throughout treatment.
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | [quote=rosymonroe]Oh, and I forgot to add the doc today said they are moving away from using the silvadene on any kind of burns now and days. Shows how things change, when I worked as a nurse 10 years ago that was our go to for burns, and the first thing I thought of when I started turning red. Now she tells me she doesn't use it anymore.
[/quote]I see LOTS of posts where ppl have great results usingt silver silvadene so not sure I agreee with what your doctor says.
Last edited by donfoo; 05-14-2013 09:12 PM.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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