| | Joined: Mar 2013 Posts: 37 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Mar 2013 Posts: 37 | Hey guys! I can't stop thinking about this. When they did the surgery they found two tumors the larger tumor was 1.5 cm & 2-3mm deep and the second tumor was .2cm & 1mm deep.
What are your thoughts on this? Have any of you ever had more than one tumor found in your tongue? They were right next to each other with negative/clear margins. Advice appreciated. Just not sure if I should put this to rest, or keep mulling it over.
Lori, age 30 (HPV-, non-drinker, non-smoker, non-tobacoo user)
Dx 3/18/13 - T1N0M0 SCC L.Tongue
Tx 4/4/13 - Partial glossectomy (no rad/no chemo).
8/8/13 - Thyroid FNA - benign nodule
12/20/13 - Tongue Biopsy - Mild hyperkeratotic dysplasia
12/26/13 - Lymph FNA - benign (dx Cervical lymphadenopathy)
3/17/14 - Tongue Biopsy - normal tissue
5/5/14 - Tongue Biopsy - (awaiting results)
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | How fabulous that they caught this so early and that they found the tiny one too - not that either of them were that large. All good. They are gone and your lymph system is clear. I would not let this occupy any more of your time than it already has, other than to be very thankful that they caught both of them.
I know it is difficult not to worry, but replace worry with vigilence. You are so much smarter now - you know what to look for and you have the network set up to deal with anything untoward. Clear Margins - Whoo Hooo - Party!!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | It is uncommon but it does happen. If I were you I wouldnt worry about it since the tumors have been removed. Its not anything that you need to do anything about so try to move past this.
The first time I was diagnosed with OC, I had 2 completely seperate tumors. The first one was inside my left cheek, that is the one I found. The second one which appeared out of nowhere and grew rapidly was behind my top left molar. They both were Stage I when discovered.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
| Forums23 Topics18,170 Posts196,933 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
