| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | It takes alot of creative thinking to overcome feelings of concern. This has been a very traumatic time for you. Luckily it has a happy ending.... you dont have cancer. Im so happy for you that you dont have anything that needs immediate attention. Try to limit the times you check your mouth and get that down to once or twice a week. It will take some adapting but you will be able to go on with your life and put this behind you. If you must worry, only allow yourself like 5 minutes then "change the channel" and think about more positive things. It takes practice but you can change the way you think by repeating this every time you begin to worry about your health. Im not saying to ignore whats going on, you still need to be your own best advocate. Pay attention for any changes and follow up in 3 months but go out and live your life.
Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2013 Posts: 17 Member | OP Member Joined: Apr 2013 Posts: 17 | You know as soon as I posted that last post I wanted to take it back! I feel so stupid feeling sorry for myself! You have been such and encouragement to me. You have been through so much yet you have taken the time for me. Thank You so very much and I am going to start TODAY to be positive and take your advice.
DX:4/02/2013 Mild Dysplasia of Left Buccal Mucosa | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Relax!!! Here at OCF we understand all those feelings very well. Its ok to come here and rant about things. We understand! Its perfectly normal to be concerned about your situation.
Hope you have a wonderful day today and begin to worry a little less. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Kroman - it's okay to feel sorry for yourself. However... This is a reality everyone of us faces - though it sometimes takes cancer or a life threatening disease to make one see it... NO ONE is guaranteed a tomorrow. Sometimes it's hard to focus on the good, or even the day to day when you have a fear hanging over your head. But the reality is, I may have cancer, have had it, or have a precancerous condition, I may face a recurrence - but putting all that aside I may also step off a curb and get mowed down by a garbage truck. Live for now, plan for your future but don't waste important time on may or may not bes...sure every once in a while you may have a thought that paralyses you with fear, give it its due attention, if its a health issue do what you can to take care of it, be diligent but not obsessive, and then move on. Otherwise you spend so much time focusing on the fear of dying or being sick that you never really live.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Ditto! so correct thinking. I add that every hour spent dwelling on the "might be" is one hour lost forever doing something bringing joy and happiness to oneself and those around you. Pretty simple choice when viewed with these two options.
As you say, tomorrow may be your last day and who wants to say they spent their last day worrying about some maybe situation or condition.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Apr 2013 Posts: 17 Member | OP Member Joined: Apr 2013 Posts: 17 | You guys are absolutley right! Thanks! I needed to hear that. Starting right now I am going to do better.
DX:4/02/2013 Mild Dysplasia of Left Buccal Mucosa | | | | Joined: Apr 2013 Posts: 17 Member | OP Member Joined: Apr 2013 Posts: 17 | Yesterday was my recheck of the biopsy on my cheek. The Oral Surgeon says its healing nicely. I told him I could feel small bump and that spot was just a little sensitive (not much) to certain foods. He said I was feeling scar tissue at stitches site and sensitivity was normal as site might take another month to heal completely. Anyway says everything looks good and have dentist check regularly for changes. I have a question..I have read that Mild Dysplasia sometime reverses itself..If so would that Pale patch in mouth actually start to go away??? Has anyone experienced this?? I am doing much better about thinking positive!!!
DX:4/02/2013 Mild Dysplasia of Left Buccal Mucosa | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I truly think anything is possible. It depends on what is causing the dysplasia. If you are eating or exposing your mouth to something that is an irritant this can cause tissue change. Stop it, and often over time the body will repair itself.
Anyone else? maybe someone else here will give an opinion. ;o)
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great to hear you are doing better with thinking positive!!! That really does help you to feel better about everything.
I dont know if mild dysplasia will reverse itself or not. It sounds like it could be possible. I kinda think that if it wasnt possible then why would the surgeons remove it if it always comes back anyway. Seems logical to me that it can be eliminated. Hope so anyway!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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