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| Joined: Dec 2012 Posts: 8 Member | Member Joined: Dec 2012 Posts: 8 | Hi LaurieAnn
There is a world renouned institution in TX - MD Anderson that you could send your file without flying there for a second opinion. Most of the Cancer Institutes will do this so you don't have to drive or fly. I recommend doing this, I didn't get treatment there just wanted to ensure my next round was consistent with recommendations. I haven't updated my profile but my Cancer returned 10 days after treatment. I was extremely surprised but at the same time wasn't because I grew up with a Mom that battled it. My Radiologist decided not give me treatment on both sides of my neck, now, he regrets this decision. However, I don't hold him responsible. My right side developed lump in my neck, I immediately went into the doctor's and surgery was scheduled. 3/65 Lymphnodes positive so Rad/Chemo automatic. After a second opinion, it was suggesed I get Genetic testing on my pathology for my next Chemo drug. This resulted in Taxomere/Carboplatin which was different than the original plan of Cisplatin. Overall, second opinions give you another look and another option, I don't worry about this anymore. I enjoy each day and feel confident I decided my plan after second opinion. Most good doctor's welcome second opinions and will contact other physicians about your case. It does concern me that your doctor has only 2-3 cases per year, but a second opinion will assist in your decision.
_________________________________________ T2 - Oral Cancer Stage IV Neck Resection -October 26, 2012 3/20 Lymph Nodes (+) Cisplatin/6600 Radiation - Began December 3, 2012 - 7 weeks
| | | | Joined: May 2012 Posts: 162 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2012 Posts: 162 Likes: 1 | Hi LauriAnn, I'm sorry for what you're going through. For what it's worth, we live in northern Illinois. When my husband was diagnosed, we got opinions from Mayo Clinic, MD Anderson & The University of Chicago. Having ties both in Texas and Illinois we were more than willing to have him treated at either center. We chose U of C, where we believe he got excellent care. If you're looking for a second opinion, I cannot highly enough recommend U of C.
wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED
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