#16336 09-08-2004 06:21 PM | Joined: Sep 2004 Posts: 5 Member | OP Member Joined: Sep 2004 Posts: 5 | Hi my name is Jenny and I am Christys & Grandmas mom. My mother has oral cancer and Christy said I could get the support I needed from this site. Everything is moving so slowly with the tests. Biopsy was to be done in 24 to 48 hours and we are still waiting one week later. Moms cancer is spreading like wild fire and she gets weaker by the minute. I called the doctor today and asked if she could be admitted to the hospital and they said no. Have to wait for the biopsy. I am so mad I could just scream. Mom is 74 years old and lives on here own. Thank you for letting me vent. Jenny
Jenny
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#16337 09-08-2004 07:18 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Jun 2004 Posts: 85 | Hello Jenny,
My wife was born in Canada and over the years we have seen how well they handle cancer patients. It is definately frustrating. When the tests get delayed like this, I tried to call twice a day. Plus, it gave me an updated list of who's on duty, who knews something and who I didn't need to call for information.
You are your Mom's best advocate. Don't give up. We're praying for you, Christy and your mom.
David
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04. 2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#16338 09-09-2004 10:30 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 482 | Hi Jenny, welcome to the site. I have been following Christy's thread but not commented as other's have given her very good support and comments and I didn't think I had anything to add. Please feel free to vent here anytime. That is one of the major benefits of this site. Get it off your chest and feel better. We've all been there or been with a loved one who has been there and are here to support you and Christy and your mom. We are also liberal with our prayers and will have you all in ours.
Regards, Kirk Georgia Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16339 09-09-2004 11:40 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hi Jenny,
Welcome to the Oral Cancer Foundation. I'm sorry about all the delays in getting any concrete information in a timely matter. Please know you are welcome to ask anything you can think of about oral cancer, someone will reply.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16340 09-09-2004 04:50 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Jenny, so sorry that you have to face this. I too wish things would move faster for you all. Remember that the body deals with cancer something like an infection. It can make the body tired just because of the fight that is going on. Make sure she is drinking lots of fluids and eating as much quality food as she can. The treatments she faces are difficult but we have been there and done it.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#16341 09-09-2004 05:37 PM | Joined: Sep 2004 Posts: 5 Member | OP Member Joined: Sep 2004 Posts: 5 | Thank you David, Kirk, Daniel and Mark for your kind words. I called the lab again to day and the biopsy is still pending. Each day Mom gets worse, I just got home from seeing her and it has grown again over night. She has a new lump on the outside of here lip, she is so swollen you can hardly understand her, and she is so angry. She started doing real weird things yesterday and I am so afraid it might have spread to her brain, is there any hope if it has? I have cried a river of tears and the damn never seems to dry up. I went back to work this week and and we are so busy that I can try and forget how rotten life is for a little bit of each day. Thank you for your prayers and emails. Jenny
Jenny
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#16342 09-09-2004 06:34 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2003 Posts: 62 | Jenny, You need to put some pressure on your Doctor. Do Not take no for an answer. If all else fails take her to Emergency and force them to deal with it that way. Some of our Medical Profession feel that we are getting our care for free so we can wait for as long as they feel we should. That is just plan rubbish. We pay their wages with our taxes. So make yourself heard, be forceful or just be a pain in their ass..........it works. I was told that it would take 2 to 3 weeks for my biopsy results. A few phone calls and a couple of "that is not acceptable" and I had my results in 1 day and was at the Head and Neck Clinic 2 days later. Have you thought of going to another city? David | | |
#16343 09-09-2004 08:08 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Jun 2004 Posts: 85 | I agree with DavidD. Time to up the ante. Bring her into emergency. She needs some relief, now. In the meantime let her doctor know that's where they can send the biopsy results. Stay Tough!
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04. 2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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