| Joined: Jun 2012 Posts: 24 Member | OP Member Joined: Jun 2012 Posts: 24 | Just wondering if any other neck dissection patients suffered any of the issues i have: 1) stroke (large or small) during surgery?. 2) hydrocephalus ? 3) obstructive hydrocephalus ? 4) Pseudotumor Cerebri ? 5) lumbar-peritoneal shunt placement? I'm doing some research re my condition and curious what 'unusual' conditions/DX others have gotten during/after neck dissection surgery. Thanks. Any info helpful. -Wendy
Wendy 48@dx Dx 2/11 stgIVSCC BOT Dx 3/11 stgI breast (3rd of 4 sisters dx'd) 4/11 dbl mastectomy; no further tx reqd 5/11 PEG placemt; 5/11-7/11 chemox7;IMRTx35; MRND 9/11 11/12 Dx:papilledema;hydrocephalus;psuedotumor. 11/12 LumbarPeritoneal Shunt 12/12 PEG Out; 100 lbs lost All scans clear
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | No. I had three neck dissections. I know what you mean about finding answers, and researching side effects and adverse confitions you suffered. It took me three years to find out some of mine. Good luck with yours.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Wendy,
Nothing that unusual. Had a selective neck dissection Feb 7th, Still having swallowing issues and nerve issues and weakness in my left shoulder and arm. Most recent development is hot stabbing pain in my shoulder that takes my breath away. Future ramifications of surgery, rads and chemo yet to be determined.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | I too had a neck dissection but none of the issues you've had, I'm so sorry you had to go through all that...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Hi Wendy
Can I just get some clarity around your question please -
Are you saying your neck dissection caused hydrocephaly and/or intracranial hypertension requiring a shunt?
Or are you saying that you have pre-existing hydrocephaly and want to know how this affects your neck dissection?
Maybe a little more of your story would be good? Sorry if I am being dense - I am not quite making the connection between neck dissection and CSF blockage ...
Stroke (big or small) is a risk of any surgery (not to mention lifestyle), and is not necessarily specific to neck dissection. There are medications that your doctor might recommend if it is thought you are at risk for a second one though (this would depend on your weight, age, blood pressure, heart health, prior history etc which only your doctor could determine).
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | Joined: Jun 2012 Posts: 24 Member | OP Member Joined: Jun 2012 Posts: 24 | Mark: your side effects similar to mine. Could u swallow before the neck dissection? I'm 18 months out from surgery now. It was hard for me because I am impatient, but I definitely improved slowly, one day at a time. Everyone is different. I hope you recover quickly and completely. Can you tell me about your "Emergency/Bleeding" incident? Privately, if need be. I have reason to ask. All these other crazy dxs are unusual side effects and I'm trying to find others who have experienced the same. Thanks. -Wendy
Wendy 48@dx Dx 2/11 stgIVSCC BOT Dx 3/11 stgI breast (3rd of 4 sisters dx'd) 4/11 dbl mastectomy; no further tx reqd 5/11 PEG placemt; 5/11-7/11 chemox7;IMRTx35; MRND 9/11 11/12 Dx:papilledema;hydrocephalus;psuedotumor. 11/12 LumbarPeritoneal Shunt 12/12 PEG Out; 100 lbs lost All scans clear
| | | | Joined: Jun 2012 Posts: 24 Member | OP Member Joined: Jun 2012 Posts: 24 | Karen: First thing, thank u for mentioning the drug you can take ( upon dr approval, of course) to fend off future stroke. I intend to ask about it at my appt this week. And, let me tell you, that is something that frightens me. It is believed (never actually confirmed) that I had a SMALL stroke (by the grace of God) during MRND surgery. Which is a risk of most any major surgery. We are trying to piece together what caused these other conditions I now have. The shunt is a life-long necessity - to fend off hydrocephalus. I've been told this is unusual by my doctors. Looking for others who've had these dxs. Thanks again. -Wendy
Wendy 48@dx Dx 2/11 stgIVSCC BOT Dx 3/11 stgI breast (3rd of 4 sisters dx'd) 4/11 dbl mastectomy; no further tx reqd 5/11 PEG placemt; 5/11-7/11 chemox7;IMRTx35; MRND 9/11 11/12 Dx:papilledema;hydrocephalus;psuedotumor. 11/12 LumbarPeritoneal Shunt 12/12 PEG Out; 100 lbs lost All scans clear
| | | | Joined: Jun 2012 Posts: 24 Member | OP Member Joined: Jun 2012 Posts: 24 | Thank you Cheryl and Paul also. I appreciate your input and good wishes. Sure need the prayers and positive thoughts. Going thru some rough times. Bless you. -Wendy
Wendy 48@dx Dx 2/11 stgIVSCC BOT Dx 3/11 stgI breast (3rd of 4 sisters dx'd) 4/11 dbl mastectomy; no further tx reqd 5/11 PEG placemt; 5/11-7/11 chemox7;IMRTx35; MRND 9/11 11/12 Dx:papilledema;hydrocephalus;psuedotumor. 11/12 LumbarPeritoneal Shunt 12/12 PEG Out; 100 lbs lost All scans clear
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Your welcome, Wendy. Two of my bothers had major strokes, non cancer, surgery related, but as a result, it was a concern I had for my surgeries. Best wishes.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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