| | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Thanks, Mickey.
Let me know what your ENT says on Friday.
Best wishes with your scan. We all know how nerve-racking they are.
Take care,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Mickey, please be careful with neosporin! That is for external use only, not for inside your mouth. If you have wounds that are not heeling check with your ENT about wound care specialists. They have all kinds of things that can help.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2011 Posts: 126 | hey kerri, i am a little over a year out of treatment and i periodically will get sore areas on my tongue/mouth, that go away in a few days. i think it is a combination of dry mouth, along with various other factors (such as food and prolonged irritation from radiation) that will cause my mouth to have these flares. I have noticed that any time i drink any type of alcohol this usually happens also.
Act dry mouth helps me pretty much, but when i am going through really bad dry mouth spells (some weeks are better than others), i will sometimes sleep with an ace bandage or something wrapped around my head to keep my mouth from opening in my sleep. it is weird and unattractive, i know, but give it a shot! it has helped me a lot
Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
| | | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Kerri, My ENT said it is a form of Glossitis, and is NOTHING to worry about (not cancer). He said Dry mouth will cause this and it may happen again (it was a lot better today). He gave me another script for his Magic Mouthwash, but I still have some from the surgery and since it is feeling better, will not fill the script as of yet. (i can tell you the ingredients if needed)
Hope your sores are getting better. I think mine were from too spicy foods, I miss them a lot.
Hey to everyone!
Mickey
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | Thanks, Mickey!
I've used the magic mouthwash before...good point. I will ask for a script on Tuesday when I see my team. I'm glad you're feeling better.
Hugs,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
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