#16292 09-01-2004 02:47 PM | Joined: Apr 2002 Posts: 13 Member | OP  Member
Joined: Apr 2002 Posts: 13 | I have been coming to this site for the past 2 years. My husband was diagnosed in Dec., 2001 with base of tongue sq. cell, with lymph node involvement. Two rounds of chemo and max radiation to neck, then neck dissection finished in April 2002. All his check ups have been good. I have continued to read here and it has helped with many questions along the way. About 3 weeks ago we noticed a lump on his right chest and another in the groin area. After a CT scan and biopsy of the chest tumor, we now know he has multiple tumors in his chest; particularly in the hilar region. Has any one else had or know of anyone who had this happen. Last check up was April and all was well??? We see the oncologist at Cleveland Clinic on Friday. Any information you can give would be helpful. We are so sad. | | |
#16293 09-02-2004 04:18 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | DJS,
I am so sorry to hear your news. I will pray for wisdom and guidance for the medical team to find the best possible treatment for your husband.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16294 09-02-2004 05:25 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello DJS,
I am sorry you and your husband have to go thru this again. I have no experience in the type and location of the tumors you mention. Hopefully someone will post who does. Best of luck!!
God Bless, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16295 09-02-2004 07:19 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Hi DJS,
Wow, something that is always not far from our thoughts....when will it come back and where. Don't have any knowledge to share with you either but want you to know you both are on my prayer list and hope the next round of treatments will kill the beast. Please keep us informed on what you learn. Best wishes - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#16296 09-02-2004 08:33 AM | Joined: Apr 2002 Posts: 13 Member | | OP Member
Joined: Apr 2002 Posts: 13 | I find great comfort in knowing that there are others out there that care and understand what only the members of this club can. Please send prayers our way for an encouraging report tomorrow. We live in Orrville, Ohio about 50 miles south of Cleveland. Thanks to all of you. | | |
#16297 09-02-2004 10:16 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | DJS,
I am currently being treated at MSKCC for a tumor in the Hilar lymph node. I had one removed from my left lung in May and we are doing chemo on this one, it has shrunk. Let me know what happens at the appointment and I'll see what, if anything, I can add. Mine is assumed to be metastases from the original tonsil cancer, but they have not done a biopsy.
Glenn | | |
#16298 09-05-2004 03:56 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | DJS - you are cetainly in my thought and prayers. Try to keep your heads high while barreling through this. We're here if you needs us,
Sabrina | | |
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