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Joined: Jul 2012
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Joined: Jul 2012
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So my mouth is pretty much back to normal. I only use the magic mouth wash to brush my teeth. Can anyone recommend a toothpaste that doesn't irritate your mouth?
Also- dry mouth. I don't have it as bad as I did and I notice when I chew gum it's barely an issue but besides the humidifier at night anything else I can do to help me get through the night?
I've also noticed my teeth are WICKED sensitive to sugar. I can't chew anything sugary. Going to the dentist soon just want a reprieve from being in pain. Did anyone else have a sensitivity to sugar post radiation?


Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
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Biotene has a great toothpaste and a great gum for DM. I have found Walmart to be the least expensive for both products, especially the gum which I chew almost every waking hour and especially during the day when I constantly meet with clients requiring me to talk a lot.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Sensodyne - highly recommended by my husband's dentist.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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Drink plenty of liquids, before meals, before bed, throughout the day. I use biotene dry mouth products too, use a soft tooth brush, even a baby one or sponge type. Sugar free hard citric candy, gum, drinking lemon water produces more saliva, as well as smelling lemons. Taping mouth closed with medical tape before sleeping may prevent moisture loss during the night, check with dr. Caffeine, alcohol drys the mouth, even in mouthwash, so avoid those. You may want to see the dentist if sugar is bothering the teeth episodically, which sounds like cavities or demineralization of the teeth. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Sep 2012
Posts: 381
"OCF Canuck"
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Joined: Sep 2012
Posts: 381
Ditto on the Sensodyne


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
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Patient Advocate (old timer, 2000 posts)
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Biotene has a new toothpaste called, "Biotene Sensitive", for sensitive teeth & cavity protection, with the complete dry mouth protection. I picked up a sample box, and will try it out.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2008
Posts: 3,082
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Winter is coming

Yep, biotene,both regular and sensitive, plus senosyde have been recommended here for over 4 years. Here is a link to one of DonB' threads back in 2008 that had interesting questions on drymouth, toothpaste. Interesting to me, anyway to see how advice changes or stays the same over the years here from posters
[ 2008 drymouth
It's good to avoid sugar anyway.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jul 2012
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Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,267
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I guess the new biotene sensitive is not so new lol. I just checked the expiration date, and it's 02/10. Thanks.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jan 2013
Posts: 6
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Posts: 6
Paul, I have been using Biotene toothpaste & mouth wash since 2005 when they did radiation on my mouth that left me with no saliva glands & a very sensitive tongue back then but I have regained my saliva glands but my mouth is still very sensitive to different things. The Biotene mouthwash doesn't burn when you use it & they also have Biotene gum & other products that you might find helpful. Your Dentist should be able to help you out there

Joined: Jul 2012
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Joined: Jul 2012
Posts: 3,267
Likes: 1
Thanks. You go way back. I use the biotene products..mouthwash, dry mouth toothpaste, did the gum and gel, but just received a free sample the other day of the sensitive, and thought it was new lol. I don't go to the supermarket anymore, so don't know all the products like I did.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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