#15969 07-12-2004 10:51 AM | Joined: Jul 2004 Posts: 5 Member | OP  Member
Joined: Jul 2004 Posts: 5 | What a interesting site .I have asked a couple of questions already and what a great help you have been. My husband has stage 4 scc tonque base(primary) poorly differentiatd.with neck mets.He has completed chemo cisplatin/5fu,taxotere,radiation and brachytherapy,radical neck dissection in 2002. He has had several reactions to chemo, Numbness in feet, Hypotension ,vertigo, and most severe is a salt wasting nephropathy.He has to take several teaspoons of salt mixed in H2o through out the day he does this along with his crushed meds through his peg tube.My question has anyone ever had this salt wasting problem I believe if we could get the salt in him some other way ,we could dc the tube,
it's been in for 2 years now. He can't swallow a pill larger than a vitamin ( round) Has anyone heard of liquid salt or maybe a salt patch? Thanks you for considerding my question patty | | | 
#15970 07-12-2004 06:12 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi Patty, I do not have any personal experience with his situation, but my question is why can't he drink the salt solution you are presently pushing into the PEG? Even if it were more dilute each time he could get the salt in plus a lot of water (which isn't a bad thing) Just an idea 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#15971 07-12-2004 06:18 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi Patty, glad that we've been of help here, we all try and help each other.
I've never heard of the salt problem before, but mixing it with liquid sounds about like the best thing to do at the moment. Salt is basically a water souluble crystal that's left over when the water evaporates otherwise known as sodium chloride. Have seen salt farming in Thailand, quite interesing. I would think pill form would be too harsh, and I don't think it could be absorbed through the skin.
That having been said, all the other side effects your husband has had are pretty much standard fare for Cisplatin. Please let the oncologist know he's experiencing them.
Sorry to hear that he's still not able to eat much orally, hope things get better soon.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#15972 07-13-2004 10:02 AM | Joined: Jul 2004 Posts: 5 Member | | OP Member
Joined: Jul 2004 Posts: 5 | Thanks for your idea's. Wade says he couldn't drink 3or more liters of saline everyday, he be gagging all day. I guess i was hoping that some company may be developing a patch like duragesic or green tea that someone knows about I know his other side effects are pretty common and he seems to deal with them ok it's this salt wasting one that keeps him from progressing.It sounds like it's a pretty uncommon one. He had to retire because of it and I know that has just crushed his ego. Thanks again patty | | |
#15973 07-14-2004 06:42 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Patty,
I am not an expert on this subject, but I just went into my kitchen and mixed 3 tsp. of salt into 1 liter of water and found I could drink the solution as a soup stock. By adding spices I think a very flavorful stock could be made.
take care...
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#15974 07-15-2004 05:26 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Patty,
Mark really brings up an interesting point. Not knowing Wade's eating preferences, there are a lot of things that are high in sodium that could help him. I use a lot of soy sauce and miso in soups and sauces and they are very high in sodium. Other things like beans with salt pork, etc., are high in sodium.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#15975 07-15-2004 06:21 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I had no idea that these types of chemo complications existed (they are rare). Your medical team should be managing this. There can be serious complications. Here are some sources of information: http://www.medibyte.com/cme/tutorial10/tutsod.htm http://www.ncbi.nlm.nih.gov/entrez/...&list_uids=3337511&dopt=Abstract http://www.intox.org/databank/documents/treat/treate/trt31_e.htm
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#15976 07-15-2004 06:26 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 |
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#15977 07-15-2004 11:17 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | P.S. I did not drink the whole thing! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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