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Bette #159353 12-24-2012 05:09 AM
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Once he has the PEG tube, it will be a lt easier. Each 259 ml can of formula counts as 200 ml of fluids. Yu will also have to flush the feeding tube before and after the formula, and that can easily be another 240 or 180 ml of fluids. If he takes six cans of formula a day, he will easily exceed the 2 liters he needs every day. This is the plan John's dietitian has worked out for him. We have been doing this for the last 3 weeks and John has been able to maintain his weight except for the couple of pounds he lost when he suddenly developed thrombosis. The dietitian advises against drinking too much plain water as it will cause an imbalance of the electrolytes in the body.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Bette #159354 12-24-2012 06:34 AM
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What are you using to reach the 2500 cals ?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Bette #159356 12-24-2012 08:50 AM
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Try reducing the amont of liquids during each consumption, but increase the frequency, sit up while drinking, do not lay down for an hour after, when getting fom a lying position, do it gradually. Sip liquids often through througout the day. Maybe a straw will help prevent big gulps. I had a peg tube, and think that helped too. Oxycodene makes me vomit, so I switched to a Fetynal patch with better results. Actually, the body needs more liquid hydration, which should be about half a persons body weight in liquid ounces, and 20 percent through foods, but understand the difficulty. Caloric intake varies too, and there are different baseline formulas to calculate, some online, and protein needs too, which sometimes can be as high as 1-1.5g protein per pound of body weight depending on caloric need, activity, infection, surgery, active cancer, nutrional status, etc which can increse the body's requirements. Too little protein delays healing, inability to fight infection, and too much can put stress on the kidneys, and actually cause dehydration. Here is one calculatore from the USDA for healthcare professionsals for an estimation.

http://fnic.nal.usda.gov/fnic/interactiveDRI/index.php

I hope you husband feels better, and happy holidays.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Bette #159358 12-24-2012 09:33 AM
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Posts: 118
Bette Offline OP
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Reg is on Nutren 2.0 by Nestle. It's very dense. 500 calories per 250 ml. 16% protien/ 39% carbs/ 45%fat. I'm just wandering if some of the nutrition should be counted as hydration. I may be overy hydrating him if it is.


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Bette #159359 12-24-2012 10:26 AM
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Posts: 3,082
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Bette

Once again I am going to give my standard contrarian advice but only because I think you are being needlessly frightened and worried by a common myth..
I know all the doctors, the OCF posters, even the OCF website and the linked articles repeat the tired old never proven myth that you need 8 glasses of water a day. What I found amazing was that when I asked my doctors and even when I looked for citations on the OCF web site, all I got was : well that's the general advice. How about a study? How about clinical trials or proof? How about any type of medical evidence whatsoever?. Nope, none they sheepishly admitted. Plenty of articles repeating the canard, but none with proof.

I used to link to the 2005 Snopes article 8 glasses water myth I prefer to use the 2011 clever Mother Jones article instead on the 8 glasses myth: Return of the 8 glasses myth

For lots more, just google : 8 cups of water myth or use the handy dandy link below
Let me google that for you

There is lots to worry about but the water myth is not one of them. check his urine, that's what counts.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Bette #159360 12-24-2012 10:27 AM
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The canned drink can be counted, but to what extent I dont know, and may not be totally equivalent. I know liquid intake in general should be 80 percent liquids by mouth, and 20 percent liquid through food in a perfect world, and someting is better than nothing, but doubt you are over hydrating him, if consuming 48 ounces is difficult, vomiting, and just using protein drinks. My intake should be 16 cups daily, which equals 128 ounces, according to this calculator. I usually went by half my body weight, 180 lbs (90 ounces) plus factor in food by 20 percent, which is almost the same. My glucerna 1.5 cal is 8 ounces, so x that by 6 daily is only 48 ounces, so 80 ounces is still needed to be consumed, but needs are different due to activity, health status. The 500 calories x 6 is in the range, which needs generally vary from 2500 -3000 or even higher. Maybe see the nutritionist at the hospital, who can advise best.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Bette #159363 12-24-2012 12:32 PM
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I can't do the math but I did ask the dietitian and she said the supplement counts as fluid. An RN at the hospital said 250 ml (1 cup) is counted as 200 ml. Being the exacting type, I have also checked with the RO and he said 6 cans of Nutren 1.5 is enough for John who is about 195 lbs in terms of both calories and hydration. If your husband's urine is a dark color, then he might be dehydrated, if it is normal-looking, then he isn't. That is what the RO said to use to check for dehydration. Hope this helps.

One more thing, practically all the nurses, doctors and the dietitian have told me that the fluid intake should be between 2000 to 3000 ml a day.

Last edited by gmcraft; 12-24-2012 12:37 PM. Reason: Added paragraph

Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
Bette #159364 12-24-2012 12:39 PM
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Posts: 8,311
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Also another quick hydration check method is to pinch and pull the skin up on the back of his hand and then let it go. If it flattens back out then he's OK but if it kinda stays upright then he's dehydrated.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Bette #159367 12-24-2012 01:17 PM
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Posts: 118
Bette Offline OP
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Okay all great advice. His urine output is good and the color is light. I checked the skin and that's okay too. So you are probably right I am worried for nothing. Thanks again everyone. Merry Christmas


Bette/CG to husband Reggie 66

dx 1: SCC Soft Palate (12/06)
tx: chemo and rad

dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes

dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
Bette #159378 12-24-2012 08:45 PM
Joined: Jun 2007
Posts: 10,507
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Several years before I got cancer, I became very ill. I had been sick for a few days and was getting worse so my friend insisted he take me to the ER. My fever was 105 and I could barely walk. After days of testing the docs finally found out what caused me to be so ill. I was severely dehydrated due to not drinking enough water. I had a bladder infection which went unnoticed and it turned into a kidney infection which was trying to shut down my kidneys. I was told if I hadnt gone to the ER when I did, I probably would have died in my sleep that night. I still remember having several conversations with doctors and nurses about how much water to drink per day. This was years before cancer and I loved to drink my coffee, iced tea and coke. That was about all I ever drank. If nothing else, from this experience I learned that every single person needs water to drink every day even if they are getting fluids from other liquids. I had always thought I got water from the other beverages I drank but I learned that you still need plain old water too. How much? ..... thats another questions that greatly varies.

Even with taking 6 cans of formula every patient still should be drinking a few water bottles a day. This is especially important to flush chemo out of a patients body. Also if a patient has any kidney issues extra water is a necessity while going thru treatments.

Bottom line.... when in doubt check with the doc, the nurses and/or a dietician. By asking each one you can see how different their answers are.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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